Recent content by Olily0219

  1. Olily0219

    Worried and feeling hopeless

    I’ve returned to seek any advice anyone would be so kind to give. I sent many questions and ultimately had my thread closed and told not to ask more until I had an appointment with a neurologist. I bought a short term insurance plan that and my pcp referred me to a neurologist, but was informed...
  2. Olily0219

    Hello. Please advise. Greatly appreciated.

    With all due respect to the members who have been kind to respond to me- this and many other ALA stories such as this is exactly how I ended up her! I started with foot pain, followed my calf cramping (right side mainly) and then the twitches which I explained and all of the responses from this...
  3. C9D513B9-1EDC-4618-AED0-006C4BE18811.jpeg

    C9D513B9-1EDC-4618-AED0-006C4BE18811.jpeg

  4. Olily0219

    Hello. Please advise. Greatly appreciated.

    Thank you. I appreciate anyone who takes the time to respond to me.
  5. Olily0219

    Hello. Please advise. Greatly appreciated.

    I saw a Dr. today- the same one I saw exactly a year ago and he felt it was time to refer me to a neurologist, saying it was concerning that my symptoms are still present and that I’ve added a few. I’m nervous.
  6. Olily0219

    Hello. Please advise. Greatly appreciated.

    Thank you for your thoughtful response. 🙏
  7. Olily0219

    Hello. Please advise. Greatly appreciated.

    Thank you! Please understand the confusion on the internet that points me here. I can’t wait until I’m able to investigate what’s wrong with me. But, for now, I simply cannot. I have a heart for this community and do not want to bring forth any hard feelings with my questions. My brother passed...
  8. Olily0219

    Hello. Please advise. Greatly appreciated.

    Thank you.😊
  9. Olily0219

    Hello. Please advise. Greatly appreciated.

    Symptoms started a year ago this May. I apologize in advance for the typos.
  10. Olily0219

    Hello. Please advise. Greatly appreciated.

    I’m here again for more information if anyone would be so kind as to help me. From my previous threads, many have taken the time to help me, yet I keep coming back after plugging my symptoms into the internet. My main symptoms in both calves, feet, are calf spasms DAILY! Calf tightness daily...
  11. Olily0219

    Hello. Please advise. Greatly appreciated.

    Thank you for your reply. I will take your advice as well as that from the others who’ve been so kind to respond. I appreciate the time all have taken to read and respond to me. Many blessings. Penny
  12. Olily0219

    Hello. Please advise. Greatly appreciated.

    I would never treat this as a joke. I have done my best to read and reread all about ALS online before coming here with questions. I have done my best to ask thoughtful questions based on things I’ve read in many ALS presentations. Without firsthand knowledge, I have no idea if what I’m...
  13. Olily0219

    Hello. Please advise. Greatly appreciated.

    I pray you’ll respond to me and let me know what to make of this new abdomen wasting discovery. While I listed all the symptoms I’ve had for the past year, I failed to describe the intense abdominal cramps and extreme abdominal rigidity in detail. This is something that happens several times a...
  14. Olily0219

    Hello. Please advise. Greatly appreciated.

    Thank you Karen! I love you for dealing with me. I will leave, but know that I will pay your kindness forward and you have a special place in my heart! I know this site brings all the crazies out and right now, I’m one of those with a mysterious ailment that’s overriding and kicking every...
  15. Olily0219

    Hello. Please advise. Greatly appreciated.

    Also, just stiff and sore in neck, upper arms, legs daily, although I haven’t exercised in 4 days. ANA panel showed nothing months ago.
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