Recent content by Oconnokm

Thank you. I am appreciative of all the advise and information. I will stop posting until I have a diagnosis but felt it was the only forum that was available. My heart is with you all. I would like to share a resource with your group. I belong to an organization as a volunteer called...

Ok good advise. I did get a positive ANA result today. Is that common with ALS?

I can stop getting ahead of my self. I feel like time is precious and I need to do what can to preserve every minute and the crying isn’t helping. I didn’t mean to insinuate you are happy you have it rather that you have figured out away to deal with it in a positive way. I have been trying...

They are calling once they can get me in. He is going to ask to put me on the wait list per your suggestion. Initially said could take several weeks. How are you so optimistic and at peace??. Any advice would be appreciated. I feel like I didn’t pay enough attention to my body and the...

Thank you. I’m not handling this well and I’m sorry if I’m being annoying. I’m just gutted. I know you are all helpful and resourceful and will need to lean on you I’m appreciative that this forum is here

I may not be describing it correctly. It’s more tiredness and muscle fatigue. The twitches are in my legs and feet mostly and happen about every 2-10 minutes throughout the day when my body isn’t in motion . Is there anything to help relieve those? I am also waiting to see my GP for an...

I’m am waiting on my EMG appointment. Is it common for symptoms to come and go? I feel like when I first wake up I seem to be very unsteady and my neck is very sore. I have periods during the day when the fasciculation is constant and times when it’s fine. I can use my hands and then...

I appreciate the honesty.

Sorry to keep answer shopping but is there anything that mimics ALS? I’m desperate as you can see

I feel like it’s much more advanced. I have difficulty swallowing that has gotten much worse in the past month. and have lost half of the function in my hands as well as the cramping twitching getting worse. I don’t want to lose anymore precious time. There so much to prepare

Can anyone suggest ways to move things along? My MRI came back clear and waiting for the EMG but I feel like symptoms are moving faster than the healthcare system. From my research sounds like getting treatment early helps slow things a bit? I’m devastated.

He has not ordered that test. He does have EMG as a follow up. He was through but kept saying it’s very rare. My symptoms are literally getting worse by the day. It’s not in my head my family has noticed as well. Is there any hope for treatment. Everything points to 2-5 years and always...

All labs are clear. I should be more clear. The mobility in my fingers is more like they move but they don’t work right. Like I can’t button or screw a cap on a bottle. My tongue is very weak and swallowing is hard. Like I have to think and push things down. I feel like I’m trying to...

side note, I also have hyperreflexia and can't stand on a heel or walk tip toe either. I have limited it takes a few minutes for the brain and the motion to connect and then its slow and jerky - I am having so many muscle twitches and pains that come and go. My gag reflex is also off. I am...

I appreciate your reply- its just such a rabbit hole and I can't get out of it. The system is slow and my symptoms keep getting worse by the day. Making it more terrifying is my dear friend was diagnosed 2 years ago and so many similarities. I know I shouldn't read into it or project my...