Recent content by nursevictoria

JUST TO CLARIFY ** no emg every 3 months, my neuro said he wants to see me back in 3 months.. *** sorry for the confusion, i must have been to excited when i wrote this everyone! Thanks for the support!

Hello everyone! Just an update. Got a second opinion. My emg was entirely NORMALand the new neuro says that its BFS! I am going to have EMG's with him every 3 months. Thank you for your support.

Thank you for all of your replies. I cannot see an ALS specialist for quite some time. Hopefully my symptoms do not progress in this time. I am looking into other clinics that are a few hours away. I am in upstate new york.

Thank you for your response! I do not have an appointment with the ALS specialist yet. I will keep you posted. I do know about BFS, and I am hoping to have that as a diagnosis. Let me know how this turns out for you as well.

Thank you so much for your response. My symptoms are very confused and point in lots of directions. I just want to get to the bottom of this, and begin treatment- if there is any!

I have an appointment for an MRI on the 14th. Cervical and thoracic spine. with and w/o contrast. No MRI of the brain has been ordered yet. but I will request one.

I am 21 year old female. Was very active prior to symptom onset. Here is my story. Week of March 14. Noticed electrical feeling in legs after exercising. Few days later. Limb jerks and twitches all over body(Face, chest, abs, back, shoulders, legs, "down there", butt, lips, thighs...