Recent content by Nurse618

I was able to self refer to Mayo Clinic and there was not a long wait.

EMG showed NO ALS. In either limb. Nerve conduction showed I have peripheral neuropathy. Dr drew 10 vials of blood to try see why PN. He thinks I have a problem with autonomic nerves, circling back to my original diagnosis of mitochondrial myopathy.

Noticed bilateral clonus in arms today while grocery shopping. I have an EMG and Nerve conduction in Birmingham on the 11th.

My thoughts exactly. Thanks Laurie.

Yes. It started in June. Pulse 90s resting, 120 when standing today. I have history bradycardia (38) but not tachycardia. Many dysautinomia issues.

I saw neuromuscular specialist today. He did very limited exam which showed bilateral normal reflexes (2+) in legs . His assessment is my strength is normal although I know it has decreased (I was always extra strong farm girl). He said probably no MS, ALS or mitochondrial myopathy. I asked and...

I have been waiting for four months to see neuromuscular specialist in Birmingham and my appointment is next week. I can barely get around in my house (bilateral "bad legs"). Neurologist I saw in June when my body was swaying like a metronome said he wanted to see me again in 6...