Nrcam83

Hi, if some points away from ALS then that is great news. Pain points away as well normally as early symptoms go. I know how you feel with the worry and I too still worry dreadfully. It is awful not wanting to annoy people with our worries especially when others have so much more to deal with. Take this though that the experts generally all tend to use the timeline turner mentions.

I'm beginning to get painful nerves too. Mostly in my wrists. When I write down all that I am experiencing, a lot points to ALS but the odd symptom points away. I don't want to to waste everyone's time and become the boy that cried wolf but something is a miss and I very scared. I think I need to push for a scan.

Thanks for taking the time to message brad. My legs feel like jelly so this could be weakness. Not really sure how to test them! And for my hands, they feel alien to me. Almost tight over the back. Like a good stretch would sort them out but sadly it doesn't.

I can tell you this from my experience of twitching now for nearly 16 months and having had appointments with nearly every top MND specialist in London and Home Counties. Also a personal email from professor martin turner. He said less than 1% of patients report to him with twitching first and when this does happen clear cut weakness within 6 months. He has had one case that went on twitching for 3 years before weakness but this was an exception.

Hi, from everything I have been told we should not worry about twitching unless there is clinical weakness and even then there are many other things it could be.

Thank you all so much for taking the time to post. You guys have helped a great deal. I'm going to try and relax over the next couple of weeks and see where it takes me. It's been a tough month but nothing compared to what a lot of you are going through.

Thanks again. Neil.

When my problems first started, ( 2 years ago) my original neuro told me he thought I had early onset Parkinson's. It consumed me. I ended up spending a month in the psychiatric ward ( I had cancer in my mid twenties that was misdiagnosed for a year) so I felt like it was happening all over again. Because I let my fear get the best of me, I lost a job that I loved, nearly my motorcycle, and most importantly a woman I had planned to spend the rest of my life with. It was devastating. I am having some problems now that are progressing, but my doc thinks it is something to do with all the chemo I did. It can be a million things before it can be ALS. Two years after I have to tell you, get this out of your head, because a year from now you are gonna be close to celebrating a one year anniversary and steamed you didn't get to enjoy your wedding the way you could have. Congrats on the start to your new life!

Hey there,
My name is Joe. I just read your query about ALS. I too, have my own worries about ALS and can relate to yours. But I can tell you this, while I am having some problems similar to yours, I can tell you that letting the anxiety get the best of you is not a good thing. Also my calves ( basically everywhere) has been twitching on me for over two years and my legs are still as strong! I can promise ya right now that if all the Nuero tests were normal your gp did, it cannot be ALS! ALS on a clinical exam is very, very, very easy to see. I have a large portion of family that work in the medical field and I myself once was pursuing becoming a doc, and the clinical exam is very precise in pointing towards ALS or any other neuro disorder. I can say with certainty that if there was nothing that showed up on your clinical, it can't be ALS.
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