Recent content by Now stay at home dad

thank you all. That has been very helpful!

curious to see if anyone has used hyoscyamine to dry up secretions and what your experience was if you had tried. The hospice nurse recommended it but I'm just not exactly sure what the benefit is.

Thank you, Nikki. I will have to try the nasal spray!

this is the second time this year I've been down and out. The worst part is the breathing is extremely strained. that is nothing new and I have never used bipap or trilogy. I'm getting antibiotics tonight and so far my regimen is Musinex, breathing treatments with the mask and smoke stuff...

hello, just curious if anyone is in a stem cell trial or know someone who is and how the progress is. Is it working? I know recently there were a lot of ALS centers in California that were accepting candidates for the trial and really haven't heard good or bad news about it. I had a friend who...

I feel I am in the same boat as you and Pete. Some days it's a constant struggle trying to breath and others I feel I have some good hours of breathing without complication and then the struggles start again. I'm sorry you're going through this as well. It is torture. How long will this last...

thank you, Sir

Hello I'm trying to get a general idea from those who have gone through the tracheostomy process. What was your recovery time like and pain? How does it feel when breathing afterwards? Is it something you have to get used to? Is it better than what you were experiencing as far as breathing on...

thanks all. I get to start the liquid hope next week, it sounds like it is good stuff.

I'll start inquiring about liquid hope now

thanks everyone! I'm doing bolus, letting it flow in naturally with some added water. I do have the jevity, I am only feeding two to three times a day

hello, I have had a feeding tube now for about a week. I am strictly on the formula diet (i haven't tried pureeing Foods yet) and I haven't been able to control my bowels,. Everyday, sometimes twice a day I'm having accidents. Is this how it is going to be from now on? I feel trapped now like I...

hello I can hardly open mouth wide enough to get spoon full of soup or mashed potatoes in. The doctor has me at eighty milligrams Baclofen a day but only gives little relief. My jaw is so tight and teeth are clenched throughout day and night. anyone experience something similar? Did anything...

thank you all,. Very helpful.

how do these work on the wheelchair, do they go on the existing cushion or replace it? My current cushion is a bit wavy towards the back but on its own I think it will be much lower.. If that makes sense. thank you! Dave