Recent content by notBrad

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    extreme air hunger

    So sorry Darlin, I have been taking a Ativan on a regular basis and it helps a lot. I usually have morphine for cough assist. But I think that better living through chemistry is a viable option, hell, I thought that before I had ALS. You do whatever you want to especially if it helps...
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    Eczema and ALS

    I use Desinide for my problem and it works great for me. YMMV
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    conflicted, not for newly diagnosed

    Kay, only you can make the choice. I keep in mind that it is irrevocable. I am not in your shoes though. As others have said, you're very deeply loved. What keeps me going are several things. One is that our sweet boy Chance is on his last legs and I want to be there for him. My wife is a...
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    Animal companions- share your pictures!

    Our muttley's
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    I finally said 'no'

    I am "lucky" in that respect, I just pretend I am having problems with the tobii
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    hospice thinks I'm getting better!

    You could always see if you qualify for Medicaid. You have to run down all of your suppliers which we prefer because they are much more concerned about my supplies than home health and hospice.
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    Input Request: I've lost so much, please don't take my beer!

    A-freakin-men AL, can I get a witness, hallelujah. Seriously, my wife takes a small syringe and puts enough in my mouth to feel like I am drinking and puts the payload in my peg! It's especially nice because I have two best friends who both own wineries and they send us stuff all the time...
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    Social eating and feeding tubes

    There you go ladies. In a more perfect world us and our SO's would be able to sit in a dive bar and have Shots.
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    Social eating and feeding tubes

    I agree with Nikki, eating has never been a problem. I do find however the trache is a problem because I have trouble keeping up with the various conversations. I used to be fairly quick conversationaly, now I find that by the time I have typed something the conversation has shifted. It is akin...
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    Pain what really helps.

    Take a small ball peen hammer and give your PCP a good rap on the knee cap and tell him that it's not supposed to hurt. It won't ease your pain but surprisingly enough it will make you feel better...
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    one of those days

    I know that feeling! Our last golden before these two died and I walked around crying for two weeks. I don't know what it is...
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    one of those days

    With our other golden Angie Angie pilots the rv
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    one of those days

    I have a 14 year old golden retriever Chance who suffers from severe hip and elbow dysplasia and is blind! Yet he still gets up for treats, greets people at the door with a wagging tail, will wait patiently with his head on the couch until someone comes along and helps him up. And I remember the...
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    Wonderful! Of course, I realize that MMMV, but still it gives me something to be reasonably...

    Wonderful! Of course, I realize that MMMV, but still it gives me something to be reasonably optimistic about. Thanks. I appreciate it!
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    I know about them, I am going to place an order but was worried about customs. But it looks like...

    I know about them, I am going to place an order but was worried about customs. But it looks like you don't really have a problem with them. I know about the personal import program but was worried about entering into a bureaucratic nightmare! Thanks again for the info. Take care, Brad
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