Recent content by northman

I have been diagnosed with bulbar ALS. it has basically taken my voice since july, Then I got better and regained some of my voice. I have aggressively tried to slow the progression with diet, amino acids and DIY therapy.. which included me using MCI-186. Which in my opinion is fantastic...

Hi. Kris is taking MCI-186 ... he is from another forum. I am now on my 2nd bag of it. Since it is a DIY fix you have to source it yourself and then administer it yourself.

Well enough about that stuff. How was your summer? Out here in Vancouver we had one of the driest summers on record. I had bought a boat last year in an auction and so this year spent as many weekends as I could on it just relaxing and fishing. It is older but has full head with shower...

I know you are right about the doctor.. but he is cannot even contain his smile when he told me I have als. he shoved one needle in my tongue and said I have weak signal coming. From then on he made his mind up...I don't know if one needle shoved in can tell if you have als but his mind was...

Hey can I ask you a question. Since some of your symptoms are like mine. Lately I notice and people are noticing that my speech is getting better and staying easier to understand for longer. A couple months ago if I ate a meal I would be very hard to understand after (and of course no...

How are you? Just checking in. Me same I think. I do have twitches in my arms and shoulders and back and seems to get very bad when I am upset. Strength wise though no change... had the twitches now for 2 months and I am still benching 320lb.. hand strength and shoulder strength the same...

I do get a feeling like I need to clear my throat though.. right at the back of mouth..like I have postnasal drip. I wish the emg would come sooner. Living in a question mark is hell. All I want to know is what I am dealing with. It has been over 9 months now that my voice has been really...

Gargling is okay...but trying to swish liquid in my mouth is painfully slow. I don't have the ball of phelm thing... I do have the feeling like I might have some nasal drip.. but this is from the weak nasal are(hence nasal sound). My voice is very dependent on stress level and as well if I...

How are you? How is the throat? I still have overa month yet to the emg. hi... I need to talk to someone.... it is another month before the emg. Can I ask you a question... my voice will go from not being able to be understood if I am angry, nervous or upset to very understandable ...just a...

hi... I need to talk to someone.... it is another month before the emg. Can I ask you a question... my voice will go from not being able to be understood if I am angry, nervous or upset to very understandable ...just a little nasaly and maybe a little slow if I am calm. If I am not worried...

Thanks..it is the not knowing that is stressful. Thanks for your help. It is strange as I never had any twitching until I became worried that I may have bulbar als. Today after I worked out then went for a hard hour plus bike ride I came back and ate and felt great... the twitching was still...

Thanks for your help and advice. Hope you are doing well. You were saying that you are starting to get bulbar onset a bit now. I hope that is slows down and takes a break. I told my doctor that in Ottawa a girl that was being diagnosed for ALS got in for an EMG in 3 days,,he decided to make...

thanks for the advice... I went back to my gp and he called the neuro... he said he just did 4 sites and all were fine except the tongue was subdued? So he scheduled me for a emg... after mentioning I spoke with someone from Ottawa that got in in a few days my doctor said he would call and try...

Thanks so much.. Both the neuro and the GP just say it may be. Then they schedule the appointment for the EMG. The neuro did shove some needles in my arms and hands and asked me to move and lift... he said very strong for that and then he did under my jaw into the tongue and there was very...

Hi all, I was waiting on a ct scan but that came back clean. Now I have to wait for 2 months until I can get in for the EMG. Can anyone shed some light on something for me. My voice started to slur off an on about 10 months ago, then by January it was basically slurring and nasaly all the time...