Recent content by NorthForNights

2/2 Some literature is coming back saying the earlier the treatment is started the (far) more positive the prognosis, with some patients even seeing functional reversal in certain limbs. I know testing is a super stressful thing to confront, but just curious. Also, my many women in my life get...

1/2 Hi Janice, Just saw your post and so sorry about your family history. I cannot even imagine. Looks like your family members were identified having the SOD1 gene? Couldn't see anything in your history if you've been tested yourself? With all of the very promising treatments targeting SOD1 &...

Hate to be back, but I've seen a rapid decline in function since I posted 25 days ago... was convinced it was in my head after feeling foolish for posting here, but it's gotten really bad, really fast. Only a day or so after I posted here I must have started getting the swallowing and throat...

Hey there. Wondering how you're doing now? Your situation sounds fairly similar to mine and I noticed you hadn't posted in a while. Just wondering if you were ever diagnosed with anything, ALS or otherwise? Thanks and best, Paul

Hi all, It's been the most stressful few weeks of my life thinking that there is a realistic chance I could have ALS, or something similar, based on the combination and timing of some symptoms I've been experiencing... but for those of you who are diagnosed and battling this while taking your...