nona's latest activity

  • nona
    I have had fasiculations in my arms since the beginning, though I didn't notice any until after diagnosis. My arms are pretty useless...
  • nona
    nona reacted to jethro's post in the thread Final battle against ALS with Like Like.
    been there, done that :) it works for me. i put thc together with cbd 1:1 (120mg thc + 120 mg cbd at 19:00, morning app 125mg cbd (other...
  • nona
    nona reacted to KimT's post in the thread Final battle against ALS with Like Like.
    Stanley Brothers had a sale 15% off plus I used my points and bought enough to last me another year. I'm trying some THC in the morning...
  • nona
    nona replied to the thread Alphagories- a word game.
    P. Pickle ball, seems like a new favorite around here
  • nona
    nona reacted to beauty4everyone's post in the thread Wheelchair with Like Like.
    I like my Quantum Edge 2, tough I haven't used it very much. t has a horn, lights and stick-on reflectors. I had the Lift Seat added at...
  • nona
    nona replied to the thread Final battle against ALS.
    I really liked the Charlotte's Web but I burned through it in two weeks and can't afford it at that rate.
  • nona
    nona replied to the thread blow my nose?.
    I have less force and have to concentrate when I blow. I also have dedicated nose pickers. Whoever said you can't pick a friend's nose...
  • nona
    nona reacted to David's post in the thread Forum updated to latest version with Like Like.
    I updated the forum to the latest version this evening. There was an issue with the template and site rendering but those issues are...
  • nona
    nona replied to the thread My heart is broken, but he is free.
    You are in my thoughts. We are all here for you.
  • nona
    nona reacted to Kristina1's post in the thread you know what bugs me? with Like Like.
    I really like Karen's description that it's more of an endurance struggle than a fight. I had clinic yesterday and they were commenting...
  • nona
    I had my clinic at Hopkins last week and my breathing has improved. Well, probably not since I think a lot of it depends on how much...
  • nona
    nona replied to the thread you know what bugs me?.
    I don't see it as a battle either. I mean, what possible good could it do for your psyche to be in a fight that you can't choose and...
  • nona
    nona reacted to blitzc's post in the thread you know what bugs me? with Love Love.
    My reflections today regarding the idea of letting go have brought me to the epiphany that without the struggles and difficulties, I...
  • nona
    nona reacted to KarenNWendyn's post in the thread you know what bugs me? with Like Like.
    I don’t see it as a fight either. It’s more of an endurance contest for me, and trying to figure out how I can make the best of it. If...
  • nona
    nona reacted to blitzc's post in the thread Too disabled for ADA? with Like Like.
    Great topic! My gripe is with ADA recommendations for toilet height. The bar height and positioning give me very little assistance...
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