Recent content by noh1m

Hillrom Advanta Bed and Hillrom Wound Surface 300 Mattress We purchased this refurbished bed and new mattress less than 1 year ago. All functions on bed work and mattress is pressure regulating. We were very fortunate that he never had any bed sores during his 18 month battle. We paid $1700...

My brother was diagnosed last September. He has been able to control his chair using his head, ie. raise/lower footrests, backrest and drive if he chooses, but he does not. The doctor tells me that his progression is on the rapid side of rapid progression and gives him 6 months to a year ( I...

I don;t know if I have questions or if I am just venting. When a challenge arises I can usually figure it out. So, my brother has ALS and just turned 60 last month. I am 55 and his co-caregiver. His symptoms started 1 year ago and now he can't move anything but his head and he can barely hold...

I have talked with my brother before about the U sling for transfers to the commode chair. He was dead set against it. After telling him yesterday about the advise I got from you wonderful people and reading other posts on this forum, he is finally on board to trying the Hoyer for transfer...

My brother has anxiety and panic attacks as well as being claustrophobic. He takes 1 Lorazapam at bedtime and that seems to help for a little while as it only lasts for a couple hours, but it does calm him enough to get somewhat comfortable. His concern was not being able to wake his wife if...

We use an electric Hoyer lift with head support sling (from ALSA) to get him in and out of bed. He is claustrophobic and the sling cocoons him which makes it hard for him to breath so he has to have his bipap on during transfer to/from bed. That took some getting used too but now he is a...

I am a new member and my older brothers co-caregiver. It was about this time last year my brother noticed his left foot would drop when walking. Mid summer the muscle twitching started. He was diagnosed in September 2018. At that time he was still able to walk, drive and work but only with...