Recent content by njbreathles

sleeping better, the dr i saw in feb is trying to figure me out for real, that's a blessing. diagnosis soon i hope so i know what i am facing.

thanks for being my friends:)

welcome to nj, attitude to spare, but very kind anyway, awakened a few time a night , by brain sensing co2 in small amount, wake up clear out, then sleep some more..... we are fearfully and wonderfully made to have an inner alarm system, if that one doesn't ring in time, the ventolator set on...

Re: diaphragm weakness thanks susan i will look into that, i am under md umbrella, but never have asked for help, will see md person when i see dr in 2 weeks . i'll ask about help then, thanks nj

thanks for being my friend

Re: diaphragm weakness just one more thing good morning, the bipap machine settings i hadwhen this problem kicked up a notch was like a vw bug 4 on the floor, not getting out of it's own way, the non invasive ventilator is like a maserati with 5 on the floor, and you can vary the settings...

The early bird report, i have slept with vent off and on tonight, that's cool getting used to it, grand total sleep albeit broken sleep,5 hours and 15 minutes , so far the most sleep so far, a new record . good morning~ nj

Re: diaphragm weakness I have no diagnosis except ventilatory insufficiency due to proximal myopathy, from breathing muscle specialist, who referred me to neuro muscle expert, lost insurance went to muscular dystrophy doctor who pushed on my limbs, told me to keep using cane after watching me...

Re: diaphragm weakness Hey okie . thank you, i will, i doincrease volume and breaths during the day ,also diaphr. pretty freaking weak and this the worst it's ever been so the whole vent and sleeplessness is new to me my hot shot dr explained it like this to me: When you are sleeping, your...

Re: diaphragm weakness sorry about spelling vent nose gets in way

Re: diaphragm weakness I do for 1 hour on and 1/2 hour off when i am able too, i am strating to fell good enough to go for short walks and a short time away from the vent.do th blod pressure meds that were prescribed to me by general practioner, my diaph. already wweakened by pneumonia went to...

I kind of need a person to relate to... I am using a noninvasive ventilator, not all night yet, learning to sleep with it, besides diaphragm fatigues after around an hour on the machine. ( better than the half hour a week ago) My sleep is disturbed and i can't sleep for more than 2 or...