Recent content by NinjaLady

Hi folks - popping in to say hello. I think my grief (although emotionally I'm doing okay) has affected my immune system...I've had a bad cold for 3 weeks now and there seems to be no sign of letting up. I don't know if it is one long cold or 3+ viruses back-to-back, but either way I'm super...

Thank you Bonnie! That sounds like a very helpful tip that I will work on using to help cope with any doubtful thoughts or feelings. Thanks for this!

Thanks Sooner. I think I will give it a shot too. How long did you go for?

Thank you Wish. Yes, there are feelings of positivity and hope in between the waves of grief and guilt, thankfully. So strange that when I’m the midst of the beast I told myself that I should be proud of what I was able to handle and that I wouldn’t let myself feel any guilt when it was all o rt...

Thank you Sooner! You are right, no one should have gone what we or our PALS went through. I’m usually very emotionally even/steady but I’m finding these waves of grief and every day seems to be different...throws me off a bit. Did you go through any bereavement counselling? Wondering if it...

Thank you for all you kind words and condolences. It has been almost a month and it feels like a lot of time has past and at the same time so fresh like it was yesterday. I know a month isn’t a long time. I found Christmas very hard and night time in general more difficult some nights, not all...

Very sorry for your huge loss Ernie. Wishing you strength during this time. You were an amazing CALS and she was lucky to have you take such good care of her. Take care of yourself now and rest lots if you can. It is hard to slow down after sometimes.

Ernie - my PALS was hot all the time the last month before he got his wings. Couldn't keep the room cool enough for him. Even if his legs and arms were cool, his trunk was warm and he was uncomfortably hot. Prior to this last month he wasn't like this...so maybe this does mean a biological...

I’m very sorry for your loss. You have done so amazingly for your Brian and for so long. I hope you are doing okay and feel peace. Also, hope you get rest since you have been going to hard for so long, it is likely difficult to slow down and recognize your new freedom and calm. I’m with you...

My love is gone. I feel numb and lost even though I thought I was prepared for this. He hung on so so long, I don’t know how, but he did. This journey has forever changed me and my family. The little ones seem to be coping okay so far (way more clingy though), and I am trying to find a new...

Thanks Tillie and Laurie. Not sure I can get through this part...as you both know how painful it is. My PALS will have his wings soon I'm sure of it and I feel like I've been ready for a long time, but now I feel emotionally unprepared. :(

Hello fellow CALS, My PALS pneumonia seemed to have cleared and then the next day he looked horrible and mottled and were told he was really close to passing/wouldn't make it through the night. 7 days later, here we are and not sure how these things turn around, but the mottling is gone and...

Thanks Tillie. He is definitely loved. I'm not sure if he is being clingy or needy...asking for something (repetitive things) every 5 minutes it seems during the day and he lets me sleep a good number of hours and then calls for me first thing in the morning to start all over again. Also...

Thanks Laurie. I’m just grasping at straws. He is now open to the bipap and is ready for the intake process but now the clinic won’t do it until the infection is gone (in order to record proper stats/titration, etc). This makes sense. Maybe later this week or next we can finally get on board.

How low did her O2 sats drop to?