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  • I saw mnd Doc.he did own emg said no mnd. But scaduled follow up in 3 mon. I did mri of brain ( due gait issue and facial twitvhing)and it showed gliosis. Faxed to mnd doc , recieved call to come see him. Asked about gliosis..”
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    NINA197711
    He said its atheroslerosis. I dont have hbp. Asked about twitches: he said lots of his patients have that. Asked about emg he said he has to exam me . Did exam and looked my arms legs and said u r still strong... so why still? If im healthy? And said any changes vome see me.
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    NINA197711
    All this is strange to me.. any idea what he is doing? Wait and look? I dont know. Thanks a lot to all!
    Please help good people !(( I am scared and lonely with my twitches and wasting ,, cant scare kids, please help me to be strong till june 20 my emg (( thanks
    Do you have WhatsApp? I’m looking for someone to talk to too. I’m so scared. Posts here keep being delete this is my number <removed>
    PLEAse dont block me, I am refered to ALS Doctor in NYC because of my emg, neuro told me is sure 95% is ALS going to Mount Sinai to ALs center please help with answers((( please... if they confirm my ALS i dont have anyone who can take care of me, is there any places for people like me where they can stay?.. i am very scared need your edvises please(((((
    Hi everyone, I have a question about care for people diagnosed with ALS which famalies cant take care at home for loved ones, is there any places that offers any help or stay like clinic or hospital, also about equipments for need like feeding and so on, how does it work if someone is diagnosed and has noone to take really care they need , because of for exmpl. Is husband with little
    Kid, or old parent who cant do all things .. what options are there at all? Thanks a lot . Please give some info. Thanks.
    Nina, you keep repeating the same thing over and over and people are telling you "No ALS". Please do not try to message individuals with the same information- it's against the forum rules, as my message to you explains. This forum is not for you. Seek in-person medical attention. The people here are not able to help you.
    Try going to your "User CP", which can be located at the top left of your profile page. When there, look down the left side of that page and select "Private Messages". If you still can't find it, I will cut and paste the body of the message on your profile page.
    Nina, please look to the right top part of your page and select "Private Messages" to read a moderator message. Thank you
    To upload something open a reply window on your thread. At the bottom choose go advanced. Then choose manage attachments
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