Recent content by Nighthawk

  1. Nighthawk

    Goodbye

    Dear ALS Forum members, I just wanted to let you guys know how much I have enjoyed spending time together at ALS Forums. Getting to know each of you has been one of the best parts of my life. Even though we only met since this January over the Internet (when I became a member of this great...
  2. Nighthawk

    Driving Privileges being Taken Away

    I'm the same boat "Old Dog". Don't go out very often either. Too much hassle to get ready as well.
  3. Nighthawk

    1:18 am

    My deepest sympathies for your loss. I wish you peace and strength.
  4. Nighthawk

    Leg strength

    Your Dad hasn't been diagnosed with ALS/MND by a reputable Neurologist. Therefore, all you'd be doing is making assumptions which could turn out to be incorrect. Why don't you try to make follow up appointments with the Physicians that are already seeing him and wait for tests to rule out...
  5. Nighthawk

    Propofol reverses symptoms

    Did you watch the NEALS Webinar w/ALSUntangled and their conclusions about Propofol. That was to be expected coming from them. I wasn't surprised at all.
  6. Nighthawk

    NEALS Webinar w/ALSUntangled

    The ALSUntangled presentation was a mockery. X-Files? Mulder? Samantha? Comparing ALS patients' hopes to believing in UFO's? Why there was a picture of a UFO on the slide? PALS and CALS are not into make-believe and science fiction. We realize a treatment might not work, might be limited, or...
  7. Nighthawk

    I need your advice!

    Tina, LALS/MND never presents itself as body wide muscle twitching. It usually starts with weakness distally (a hand, a foot). You would notice weakness when you can't accomplish daily activities that were easy to do before such as lifting a gallon of milk, opening a jar, walking without...
  8. Nighthawk

    In regards to your Dad rejecting Tracheostomy, I think that is a personal decision by him...

    In regards to your Dad rejecting Tracheostomy, I think that is a personal decision by him. Tracheostomy (also known as Vent) puts a lot of burden to caregivers and the ALS patient alike. If I were you, I would discuss the pros and the cons of a Tracheostomy at the ALS Clinic where he attends...
  9. Nighthawk

    Jennifer, My apologies for not getting back to you sooner. I am sorry to hear that, apparently...

    Jennifer, My apologies for not getting back to you sooner. I am sorry to hear that, apparently your Dad ALS is progressing rather quickly. What you mention about throat spasms are actually Laryngospasms and they can happen even to healthy people. I don't think they are related to Bulbar...
  10. Nighthawk

    Loss Of Voice

    @Kim, There have been PALS where ALS started as Limb-onset and they never lost their voice even at the very end of the disease. Do you remember the late Forum Moderator Al Pettit? He was ALS Limb-onset and never lost his voice. There is a PALS 65 years old who attends to the our PALS/CALS...
  11. Nighthawk

    If you could give me any input on this EMG/NCS

    When is your Neuro planning to discuss your EMG results with you? That would be a very important step. When you are at his office discussing the EMG with him, ask as many questions you deem necessary. Do NOT leave his office until all your doubts and concerns have been clarified. Is that...
  12. Nighthawk

    If you could give me any input on this EMG/NCS

    I thought it showed up on EMGs (Lower Motor Neuron dysfunction) showing chronic and acute denervation and in the Clinical Exam looking for Hyperreflexia, Spasticity, Clonus, Babinski, etc. (Upper Motor Neuron dysfunction). MRI, detecting it would be new for me but...you also had a Spinal Tap...
  13. Nighthawk

    ALS etiology - environmental factors?

    @emdeekay: I second what Elaine posted but, I would also add this: if you have the chance, try and open an account at ALS-TDI Forums. They have several threads there with very scientific explanations about the causes of ALS/MND and they link to scientific papers/abstracts by experts of the...
  14. Nighthawk

    If you could give me any input on this EMG/NCS

    @texastracy: Thanks for the update. As you can see, you do NOT have ALS/MND which is by itself very good news for you, confirmed by your Doctors. Take care and try to say off these boards for your own peace of mind.
  15. Nighthawk

    Propofol reverses symptoms

    TO: My fellow PALS. Please, excise caution if you are going for Propofol treatment overseas (outside U.S.A.). We already have reports coming in that they turning the "Only $1,500 a Propofol Treatment" to much much more than that when you arrive according to some PALS and a few other people who...
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