Recent content by nicolea

Hello, I haven't posted for quite some time. It appears my prior post had been closed. Sorry if that is inaccurate and I'm posting out of turn. So I got married and the wedding/honeymoon is finally behind me. I have been doing very well with not researching the internet for things on ALS and why...

Thank you for the kind words. I have been very stressed lately from wedding planning and work and kids, etc. But I have a question regarding cramping. I've read that cramping is a pretty common early symptom/sign. Does this 'cramping' mean like Charlie horse type cramps that make your toes and...

Hi, I'm just checking in again. I have had persistent muscle twitching and cramps and it is becoming IMPOSSIBLE to ignore. Of course my neuromuscular specialist appointment is MONTHS out. My wedding is next weekend and my honeymoon is the week after that. I have started seeing a counselor to...

Thank you again for your response. I am having an INSANE amount of muscle twitching. The type of twitching has kind of shifted as well. I have more of a fluttering/wormy type twitching in my thighs that aren't exactly constant but they happen quite a bit. They come on standing, sitting, laying...

I haven't seen him yet, the appointment is 3 months out.

Hello. So I was finally referred to a neuromuscular specialist. I'm still unfortunately still having some issues. My left arm primarily the main thing. I'm still experiencing twitching body wide usually in my left arm more and usually after using it or bending it. I also notice when I move...

Wow, that's comforting (sorry that sounds terrible) to know that it can actually manifest that way. I'm sorry of course that you had to go through that. She's given me Sertraline to try. I've spoken with my chiropractor a couple of times over the last few months and I think I'm going to really...

I do not have a therapist/counselor. I'm to the point now though that I am going to look into one. I just can't shake this constant arm cramping and finger stiffness. My PCP is not referring me to a neuromuscular specialist. She doesn't think it's necessary at this time but I have an appointment...

So I saw my neurologist yesterday and he was actually kind of harsh and rude. He came in and said "Well nerve conduction was completely normal so I don't know what to tell you." I explained my shortness of breath, burning left shoulder blade, and terrible cramping pains in my left arm. He said...

Thanks again, Mike. I see my neurologist Thursday again. He is most likely going to order an EMG as the next line of testing. I've also read conflicting information on EMG testing for arm/shoulders. Some say that since it's 'upper motor damage' it wouldn't show on an EMG anyway. Well then why...

Shoulder issues/Shortness of Breath Hello, I have a few questions for you guys. I realize I’ve been here before with symptoms and I did take it to heart and chalk it up to anxiety and possibly a pinched nerve or something but the symptoms are still here and in my opinion worse. I still have all...

Thanks for your message! I have to remind myself that ALS would not jump around like this. But of course, I'm anxious and my mind takes over no matter how much I know it's crazy.

Thank you guys so much for your responses. You really have helped me. This is a side question and I'm just curious....I have read more than most should on ALS/MS and a couple other diseases. In ALS specifically has it been seen for there to be tremors or twitching in fingers/hands/limbs? Like...

I guess a question would be...in your experience of all of the cases you've seen, is it possible for someone to 'feel' the weakness gradually come on?

Hold the baby*** Sorry.