Recent content by NHAMM

As someone who lost their mother a little over a week ago to this awful awful disease, please accept my sympathy. My thoughts and prayers are with you and your family.

Thank you all for all your comforting and encouraging words. Even though I do not personally know any of you we all have the share a common bond.

My mother was diagnosed with Progressive Bulbar Palsy ALS Feb 2010. My mother lost her battle this morning around 3:30. My mother was one of the bravest women I have ever known. Very seldom did you hear her complain. Not when she couldn't talk, nor eat. If she did complain, she would always...

Things are getting worse and worse for my mother. We now have hospice, and basically she is now having someone stay with her all the time. She still walks with her walker, but if things keep progressing within the week she will no longer be able to do this. Tonight is my night to stay over...

My mother now gets all her nutrition from her peg feedings. With all the other health issues and trouble she now is having alot of problems with acid reflux. She take Prevacid but that is no longer helping. She will be having a spell with the reflux and then her mouth clamps down and locks...

Thanks for all the responses, after a rough day yesterday I think she is now ready for bed. It has been getting harder every day for her to get out. Yesterday while at home by herself, she slipped out of chair. After an hour she had pushed her Life Alert. My sister and I was able to get her...

All I can say is that you are in my thoughts and prayers.

My mom has progressive bulbar palsy. She has to use walker to get around and we have had to get her a lift chair. She can not hold her head up when moving around. She still insist on being as independent as she can. She still sleeps on a regular bed but is now having trouble getting up out...

What dosage seems to work for the atropine?

What dosage of atropine do you use? My mom goes to her doctor next week, and wanting to talk with him about atropine. The drooling is something that bothers her so bad. What dosage have you found that works?

My mom also has PBP, she can no longer drive, but when she was still driving, she went to the gas station. It was a gas station she frequented often because one of the few that had full service. The man came up to the window and she wrote on her board what she wanted, he looked at her and...

My mom takes the ampitriptylene(not sure of spelling) to help her drooling. She takes two pills at bed time and sometimes three if its been worse that day. Some days if it is real bad she will take a half during the day. She tried the patch but it didn't help her. We checked with her doctor...

I am writing today in need of some advice, hoping some of you out there may have some suggestions. My mother was diagnosed with PBP in Feb 2010. She can no longer talk or eat. She is getting weaker daily. She can no longer hold her head up when she walks, and is using her walker. I hate...

It has been a while since I have had some questions but things are constantly changing. My mother has bulbar onset ALS. It has now been a little over a year since she was diagnosed. I cannot get over how much things have changed in a year's time. I am lucky in that I live close to my mother...

I would like to get a update from any of you all that have had experience with botox injections. My mother goes to the doctor in a week or so and we were wondering if this is something that we should look into. We are approaching the 1 year anniversary mark since she has been diagnosed. Today...