Recent content by next coca cola girl

Sorry for everyone's loss. As I'm the one losing this battle I'd like to know how to ease the burden of loss for my adult children and grandkids? My husband takes care of me now. What can I do now that will help them after I'm gone? I'm unable to speak.

Hallelujah God is good, Cry out to Jesus. He has a big shoulder and loving arms. He prepares a place for us.

Welcome this is a good way to speak when you can't talk and alot of insight next coca cola girl

Would love to but have feeding tube and to hard to drink carbonated drinks just collect. Now on disability not buying anymore but thank you.

Thank you and its this for the phone or a separate device?

Thank you for your answers very helpful.I've learned alot on this forum.It's comforting to get responses. I know this is a long process of decision making. IKnow more it's easy for me to say what I want and don't want but as time goes I want to make the best choices not for longer life but...

Very funny so nice to hear I'm not the only one. My husband the other day seen me struggling pulling up my pants, so he asked can I help, he's alot taller and stronger gave me a wedgie that hasn't happened since I was a kid lol. I was laughing so hard trying to ask him to fix it.I still laugh...

You mentioned you have one like mine but what is the other one you do like?

Thank you so far I don't have oxygen but I do know my breathing is more shallow and I get winded with small tasks. Another question does breathing exercises wear out the diagram faster? Also can you have oxygen without a ventilator? What is a sip and puff ventilator? I have bulbar ALS. I have...

I have a question.As my breathing gets weaker is having oxygen at night with a bypap at night and is that the same as ventilation?

Good ideas I'll try them as I'm trying to be as independent as long as I can

Hallelujah he is risen indeed