Recent content by NeverPan

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    Your Diagnosis Short Story

    To All, Many thanks for your honest opinions and heart felt replys. I apologige for getting too personal, that was not my intention. It was selfish of me to ask, as no one needs to explain their story to a stranger. I wish all of you the best of luck and many prayer to you and your families.
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    Your Diagnosis Short Story

    notme.. I agree, and to clarify, i'm not anxious with regards to ALS. i'm sure that it's possible for some to be anxious about their own mystery illness, but that's not me. I have always been a caring person and wish nothing but the best for others. In my journey of discovery, I must admit...
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    Things are progressing

    BMRA, I would have to agree that bipap would be worth a mention. I have been diagnosed with Dysphagia (difficulty swallowing). I have difficulty breathing but only when lying on my back. I have found that turning on my left side helps me sleep better. I too have not had an ALS diag. I also...
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    Your Diagnosis Short Story

    First of all , I would like to say thanks to those who share and inspire others...May you be truly blessed! I speak only for myself here, and instead of asking a multitude of questions, I would love to hear some of your stories of diagnosis. I feel at times that doctors are impervious to the...
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    Dysphagia...so they say

    Hello Geezer, thank you for sharing. I pray that he gets to come home, time spent where you love to be is invaluable. best wishes to you and your family.
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    Dysphagia...so they say

    I digress... Luke, My ENT's office contacted me and asked that I come in, Doc indicated Dysphasia and confirmed vocal atrophy (voice is Nasal and hoarse/gravely). He recommended a speech therapist. Doctor's concern was the underlying cause and recommended a Neuro as well. ( I can't seem to...
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    Dysphagia...so they say

    Tokahfang, Thank you for the input. I guess as things change it's difficult to accept that change and that maybe some sort of assist will be needed with something that seems it shoudl be so easy and natual . I will check into the product you mention.....best wishes.
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    Dysphagia...so they say

    Luke, Yes I did a complete berrium liquid and coated eggs (of some sort) Then some for of crystals that poped and fizzed. The hospital that conducted the study, had a phy perform and no comments were made at the time. Indicated that after exam results would be sent to ordering Doc.
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    Dysphagia...so they say

    Thanks Tokahfang, It's been problematic, mostly liquids and frequent choking on just the smallest sips sometimes. Went to ENT, and he spayed my throat then did a visual exam said he sees slight atrophy of the vocal folds. This is what sent me in for the Ensophagram. Still not freaking out...
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    Dysphagia...so they say

    OK..so as of now many of you have read my neverending story....and the saga continues. Let not talk ALS, but instead go with today's fact. I have been diagnosed with Dysphagia. Completed and Esophagram last week, got the news today. Oh these are troublesome times.... is this good, bad or...
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    How can they be sure?

    I will answer notme and Helen.. again many thanks for the input. Symptoms have been very gradual not all at once, but nothing seems too severe...Does that make sense? Meaning, although this began with left hand weakness and difficulty grasping the only difference today is that my left bicep is...
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    How can they be sure?

    Thank you Johnny, This forum is a reminder that were not alone in whatever struggle we are dealing with. Many thank
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    How can they be sure?

    I too new at this I just posted in response but it appears it went to neverland....many thanks and additional symptoms that I forgot to mention. (because i'm trying to forget). Difficulty sleeping on back (stop breathing momentairly) Went for Sleep study and no apnea...not sure at this...
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    How can they be sure?

    To those Jamie, Johnny and Ms. Pie, Your thoughts are much regarded. I feel something but don't know exactly what. I have also neglected to mention other things....you know...the other things, like legs have started with morning stiffness and sore calfs. Trouble sleeping on my back and stop...
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    How can they be sure?

    Thank you for reading my long story. I have now been referred to OSU's Ohio State University's division of Neuromusclar medicine. They are scheduling 4 months out. Thank you for your honesty...much appreciated.
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