Recent content by Nene

  1. Nene

    leg twitches

    Hi all, does anyone have a suggestion to control leg twitches, my legs are bad they keeping me awake
  2. Nene

    What did everyone do for a living?

    Hi all, I worked as a hairdresser for 30 years before being diagnosed
  3. Nene

    rilutek

    hi dukey, i was taking it but stopped as i had side effects, nausea, headaches feeling very tired. i feel so much better since stopping it quality of life is more impoertant to me
  4. Nene

    tcm hospital

    china or bust hi Bala good luck to you I hope you find success.This disease is terrribly hard to deal with I am very interested to hear about your progress. I uggest you might google Steven Shackel and read his story it might help and inspire you. Anyway goodluck take care
  5. Nene

    going good in aust with rilutek

    cairns hi Joe, the docs name is Reimus i also see him I go back at the end of January. I stopped taking rilutek as I had side effects I have been told what type of mnd I have yet I hope your mum is doing ok google Steven Shackel his web site is very interesting
  6. Nene

    shackel

    Hi all just wondering if anyone has read Steven Shackel's web site. If you have what are your thoughts if not probably worth a look. ttp:/goulburn.net.au/-shack
  7. Nene

    hair loss

    Hi all, has anyone else experienced their hair falling out. Is it a common sympton?
  8. Nene

    Did any of you with ALS start with slurred speech?

    slurring Hi I too started with slurred speech I sounded like I was drunk then I had balance issues now swallowing is affected i was diagnosed Oct. 2007
  9. Nene

    cord bl on this possible treatmentood

    hi all has anyone heard any progress on using cord blood. grateful for any info
  10. Nene

    identity

    This is for anyone who can help.I need to change my username as I am getting some very sick emails. So if someone could tell me how to contact administor it would be appreciated.
  11. Nene

    going good in aust with rilutek

    neighbours Hi Joe, glad your mum.s doing o.k. I live in Cains so wwe r very close. I was diagnosed October2007 with mnd it came as a shock as I am 46 fairlyyoung, I travel to Townsville to see neurologist as we dn't have 1 in Cairns. Who does your mum see?
  12. Nene

    sympton

    speech hi Gina yes I can still say entire sentences my speech is only slightly slurred and it comes and goes.
  13. Nene

    sympton

    Hi all does anyone have nainly just speech problems. I have slight balance problems but my main sympton is slurring of my speeech which seems to be getting worse.
  14. Nene

    work

    hi all just wondering what type of work you did i was a hairdresser for 30 years. r any of u still working
  15. Nene

    what do u think

    Hi everyone, I have just been reading about MOTOTAB has anyone tried it love to know what you think
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