hi dukey, i was taking it but stopped as i had side effects, nausea, headaches feeling very tired. i feel so much better since stopping it quality of life is more impoertant to me
china or bust
hi Bala good luck to you I hope you find success.This disease is terrribly hard to deal with I am very interested to hear about your progress. I uggest you might google Steven Shackel and read his story it might help and inspire you. Anyway goodluck take care
cairns
hi Joe, the docs name is Reimus i also see him I go back at the end of January. I stopped taking rilutek as I had side effects I have been told what type of mnd I have yet I hope your mum is doing ok google Steven Shackel his web site is very interesting
Hi all just wondering if anyone has read Steven Shackel's web site. If you have what are your thoughts if not probably worth a look. ttp:/goulburn.net.au/-shack
slurring
Hi I too started with slurred speech I sounded like I was drunk then I had balance issues now swallowing is affected i was diagnosed Oct. 2007
This is for anyone who can help.I need to change my username as I am getting some very sick emails. So if someone could tell me how to contact administor it would be appreciated.
neighbours
Hi Joe,
glad your mum.s doing o.k. I live in Cains so wwe r very close. I was diagnosed October2007 with mnd it came as a shock as I am 46 fairlyyoung, I travel to Townsville to see neurologist as we dn't have 1 in Cairns. Who does your mum see?
Hi all does anyone have nainly just speech problems. I have slight balance problems but my main sympton is slurring of my speeech which seems to be getting worse.