Recent content by Neilswife

So sorry to hear of Mist's passing. The tribute you created for her is lovely.

You said, "I need Liz's permission to be happy." I wonder what that would like like for you right now? You may want to write Liz a letter. Allow yourself to say whatever you want to in the letter and see if you can't find some answers in the process of writing, but just let your mind go...

Congratulations on all your accomplishments -- they are vey large. It is nice to hear that you are able to move on and find some happiness after ALS. We are still struggling here ... my daughter has chronic illness which we are trying to get under control so it is really nice to read that you...

I am so sorry for your loss. I can tell how much you loved your brother. I think it is very normal to hope for something hidden from your brother. In this way, you would be hearing something from him after he was gone. Please do not be disappointed though if you do not find anything new from...

Thank you for the education. This is really interesting!

Gooseberry, I am sorry your sister is not doing well. I hope she will soon be feeling better. I know how hard it is to have family ill so be sure to take care of yourself (and it sounds like you are). You are so right about the future not being guaranteed, but that is true for everyone, it is...

Manhattanite, The "firsts" are all so difficult, but I felt an enormous sense of relief when all the firsts were over with. Of course that was replaced by another feeling of the intensity of the loss, but I feel it is something I must go through to process my grief. You are doing exactly what...

Love the koala flop. Orchid looks so content!

Barbie, Your comment "I am stuck in the present too-I think the past is too painful to look at and the future is too scary even now." hit home with me. I can tell you are healing and that is wonderful but it is just a really long process after going through something like this for us to feel a...

Tillie, No, I had not seen Bullet in Neil's tree. I don't know how I missed it. The week has been crazy. I was drawn to the forum, but somehow missed this special video but saw the orchid one right below it. Thank you for pointing it out, as I would always want to see those videos. You are...

Tillie, This video of a koala with an orchid was just what I need to see today too! Your gardens are so lovely and I am a big fan of orchids too! I have never seen them looking so beautiful outside. Thank you for capturing this special moment for all of us to enjoy!

I am so sorry for the loss of your husband. What happened to him was my worst fear also, so I do understand how you feel about finding him on the floor. Be comforted by the fact you told him how much you loved him. In the end, the only thing that really matters is love and you expressed that...

Oh My Tillie this is just so unbelievable! I have been so busy that I did not have a chance to check this thread until now and I am so excited! The video is fabulous ... thank you for making it! It is really wonderful how Maxine has never ventured there, but decided that today was the day. I...

Tillie, I have been wondering for awhile if Neil's tree still gets koalas in it? It is getting close to the first anniversary of his death and I found myself looking through all the posts he had made in this thread and it made me feel close to him. It is nice to be able to look back on this...

I am sorry you are in so much pain. I too lost my husband after 21 years of marriage to bulbar ALS after a 2 year battle. It has only been 10 months so I don't know what it will be down the road. I just know it is very hard right now. The pain of losing someone to ALS is indescribable. I...