Recent content by neen

Thanks everyone. We did see her neurologist who says this is only his 3rd ALS patient. I'm still not 100% convinced on the diagnosis but we are headed back to the Lahey clinic Thursday. I hope to get more information then, especially testing results etc. I saw something online (in the many...

Hi looks like you are an expert in the field! My mom told me she was recently diagnosed with ALS. I am going with her to her neurologist appointment next week. What kind of questions should I be asking? Fibromyalgia, Parkinsons, and a host of other interesting diseases run in the family. How...

Barbie - Rockland is a llloong way from Orlando but I bet the weather is much warmer there right now! I'd ask you husbands name, except its a public forum and this is all new to me. Thanks for the info & enjoy some sun for me :)

Thanks ~ I know they did an EMG when she was referred to a neuromuscular specialist at the Lahey clinic from the neurologist here in Maine. From everything I've read it seems to be a process of elimination but I can't quite figure out what other problems it can be confused with or exactly what...

Hi My mother was recently diagnosed with ALS and I am going to meet with her neurologist soon. I'm not sure about the diagnosis and want to know what questions would be beneficial to ask to assure it is an accurate diagnosis. Thanks!