NeedCourage

Hello my friend

Just checking in Nancy - hope you are ok.

Trina

I'm baaaaack ... after a very terrifying day. Looked like DPS surgery was NOT going to happen but got it straightened out with help from terrific Cleveland people in Dr. Onders' office. Phfew....

Hi Nancy, Just checking in and making sure you are okay.Steph

Just can't read or write for awhile ...
Probably just need some time away from computer to watch mindless movies.

Your avatar is a hoot!

Dear Nancy,
Thanks for your loving note. I think you're lucky to be able to cry, it's such a healthy release. I'm glad you also have such a loving guy. I do get moments of overwhelming sadness but I pull myself out of it. Hope your second diagnosis went well and that you found a single story home. Hang in there my friend.

Sherry

Nancy that avatar is BRILLIANT, the hairdo is 'so you', and 'so me' in fact! Tillie

did you get the pm I sent you a few days ago? Not sure I even remember how to do it right
Trina

Hey Nancy,
Thinking of you.
Trina

hugs Nancy

I know that I was not going to spend the last of his life arguing with him, when I couldn't fix him, I couldn't even be certain what impact anything I would do differently would have! I spent my whole time as a carer feeling lost.

So how do you decide? It's something you can only work out on the spot. For the most part, the further he progressed the more I realised that unless I took right over, I may as well just support him completely and let it run its course. Not easy, but there were no good choices.

Please do keep talking, I promise I will make sure this goes through ... Tillie (end part 2)

I said something along the lines of - this was the hardest part for me by far. PALS feel like they have so lost all control, and so the hard bit is do we take more control from them because we know better? Just no good answers here, just none.

As you know my Chris had FTD, so I was often so distressed by his choices. Actually it was often more his inability to follow anything through logically and methodically. He would know what the right choices were, he just couldn't process it and follow things through.

I had to make decisions, and you know we make decisions with what information we have at the time. Looking back with benefit of more information we may wish we had decided differently, we may realise our choices were not as good, but at the time, we can only do our best.
end part 1 ...

I have no idea what happened to my original reply last night, so sorry!
It may have been too long, I've just had to split this into 2...

OH NO, I wrote a lengthy reply!!!!!