N
Reaction score
6

Profile posts Latest activity Postings About

  • Hi :)
    I didn't mean my comment to be taken as an extreme.
    Many PALS think that they will slow progression by doing as much as possible and even taking on exercise programs. This will indeed hasten progression.
    I have written in other recent threads about how muscles work, so in short - if a healthy muscle is damaged then it repairs itself, and exercise to build muscles works by causing micro tears in the muscle, causing the repair process to build increasing amounts of muscle. So if a PALS over exerts any muscle and causes micro tears, the muscle cannot rebuild and so the tiny tear is another bit of muscle that is now dead.
    Hope that makes sense? Tillie
    Merry Christmas! I hope it is a good day for you. I'll be working my job then on the switchboard at our local hospital. I will be celebrating Christmas Eve with the kids. We will have dinner, play some games, go to church, and open a few presents. This year we got more gift cards and wrapped them up then anything else. They are at the age that they like to pick out their own stuff. Take care, Kim
    Absolutely true. Chris always felt he had to 'fight' ALS. He would not conserve energy, he would not accept limitations. So he would overdo things, then be exhausted for a couple of days and show progressive weakness in the parts he over-used. Then of course he would fall and had horrible injuries that ramped up progression yet again. He would spend all his energy on the most mundane tasks, and have nothing left over to try and enjoy anything in life. hugs xxx Tillie
    Hi Nancy,
    Just dropped by to say Hi! I can't believe Christmas is only 10 days away. I am way behind this year in getting things ready this year. We usually get our tree up right after Thanksgiving and this year we just finished getting it decorated last night. I'm off Christmas Eve but work Christmas on the switchboard at the hospital. I work noon-6pm and then come back to work the midnite shift that day. I will bring my Ipad to work and probally be on the forum then. Hugs, Kim
    Hi Nancy,
    I goofed up and wrote on my own wall. I'm doing ok. Just got back on some antidepressant. I'm prone to depression and with dad having ALS and then eventually getting a legal separation on top of these. My dad is doing so-so for having ALS. He doesn't have much use of his limbs but he still breaths well, can eat, and talk pretty good. I call him twice a day. I hope to visit him after the first of the year. Take care, Kim
    It seems I may be the only (or one of a few) who change their avatar. I use it like a barometer when I come here. We have been through a very rough week, and so now I just want to hang onto my partner. I wish we could cuddle like we used to but the bipap makes it awkward. We make do.
    Nancy - just read your thread on crying and want u to know that u are always in my thoughts. Be strong sweet lady. Trina
    Hi Nancy,
    I enjoyed looking at your pics. Glad that you and Toby got to go on the trip. You looked like you had a great time. I love your positive attitude even though I know it's not always easy. Hugs to you, Kim
    I loved all of your pics! You and Toby look so happy together! I am so happy you are still getting out and he has such wonderful friends. Thanks so much for sharing them : )
    Trina
    Thankyou for responding to me I really appreciate it My heart goes out to.you and your husband I know God will help you guys through this monster I appreciate your support I just know in my heart there is absolutely something wrong with my shortness of breath muscle twitching cramping hyperreflexia atrophy in left hand and weakness but there they cant find a diagnosis yet and I have to.take it as great news and try to live my life the best I can for my 3 small kids I apprecoate the support again and I wish you the best always
    I sure understand that overwhelmed feeling. It is so difficult when breathing is first to fail
    as all the issues must be faced so quickly. I send my understanding and encouragement.
    I hope you are able to gain some assistance from friends or family. Perhaps you could teach
    them what you know.
    Hi Nancy, I tried to find your Help thread but not sure which it was. What is your question? We have been very busy with the new puppy, and then Tim was just diagnosed with diabetes, and fatty liver. I guess I did too good of a job getting weight on him. He originally had lost 30 lbs, and we were told if he loses weight he dies. Well I am good at what I set my mind at, and he has gained 60 lbs. I have been giving him coconut oil in his smoothie every morning, and I think that contributed to his fatty liver, and elevated liver enzymes. So no more coconut oil, and using Stevia for a sweetener. I have been pretty tired lately, and having some difficulty with my shoulders and arms from all the lifting. Well let me know how I can help you.

    Paulette
    Hi nancy my name is john im going through the ringer of getting diagnosed hoping its not als of course but im believing and how my symptoms started was shortness of breath 6 months ago I saw you lived in pa I live in philadelphia and I just was wonderingif you had a good doctor to diagnose in pa I appreciate ot my prayers are with you and your family always
  • Loading…
  • Loading…
  • Loading…
Back
Top