Recent content by Narrowminded

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    Speaking with tracheostomy on the ventilator

    Welcome Adroit, My husband was on a trach and vent for 8 years. For approx 6 of those, he was able to speak with the trach. He did not have a speaking valve. The way we worked it, as directed by his physician, is the cuff on the trach was deflated and he was able to talk around it. The...
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    A Strange Dream

    Made it through last week, then this week had to attend the funeral of Brian's Aunt. She was 97, she lived a very good life. Parts of the service were hard, but we went as a family and good times were had with relatives we don't see very often. Life marches on. Came home to a house full of...
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    A Strange Dream

    It's been a rough week. Our 39th anniversary would have been this past Friday. Times like these I miss Brian more than I can say. I pushed through and I'm ok now. I will tear up a bit, but not as bad as earlier in the week. Will this ever end? I have no idea. I hope everyone is doing...
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    SeaGunny’s thread

    Grief is fickle. I am out 5 years, and most days are good, however certain times of year are hard. This past Friday would have been our 39th wedding anniversary. Yeah, the week was a mess. I will say finding a counselor/therapist for a one on one is the way to go. It may take a few tries to...
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    Turning The Page

    Sea Gunny, I am not in Maine, nor am I on the coast. However, if you'd like to visit, please DM me. hugs
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    Advice for the Tracheostomy/Advocating

    I don't post here often anymore. I lost my PALS 5 years go. He was trached and vented for 8 years. The biggest issue is they keep losing abilities. You've mentioned that your Dad can't move much or change his bed position. If he gets a trach and vent, he would need someone in ear shot 24/7...
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    A Strange Dream

    Happy New Year Everyone!
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    A Strange Dream

    Merry Christmas everyone. I pray you all can find some joy in this holiday. It isn't always easy, but our PALS would want us to move forward. Hugs
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    SeaGunny’s wife

    SeaGunny I didn't get to know you before, as I only visit this forum on occasion now. I lost my DH 5 years ago and I still have time that set me off. We suffered much of what you did with help. My DH's journey was 14 years long, 8 of those with a trach and vent. Because of that I totally get...
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    A Strange Dream

    Thank you Mary. Yes, the 14 year of Brian having ALS also aged me. I too am still out of condition. I get exercise in, just not in any regular fashion. I keep trying to change that. My worst thing is trying to eat my feelings - definitely NOT good. It does ease up as time goes by, but there...
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    A Strange Dream

    Thanksgiving will DD was wonderful. However, being home is not good. This week is not good. Thursday will be 5 years since losing Brian. I cannot believe it has been 5 years. It seems like yesterday and also a lifetime ago. Not sure if it is because it is the 5th year, but this evening has...
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    A Strange Dream

    Hi All, Wanted to pop in and wish everyone a Happy Thanksgiving. If you don't celebrate, I hope you have a wonderful week. I will be headed to DD's. It will be nice to visit them for a change this year. Hugs,
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    Turning The Page

    Lenore it is so great to hear from you. Generally I pop on about once a month. I've been looking for a post from you, wondering how things were with D and how he was doing. I'm sorry that things didn't end the way you hoped, however I think you are seeing a bigger truth. I'm glad you are...
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    A Strange Dream

    I see another month has come and gone. It's been busy. I did go on vacation and then had my colposcopy. All is well with my health. The newlyweds are doing well. I am actually going to their home for Thanksgiving and DSIL's parents and sister will be there as well. They wanted to have a...
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    A Strange Dream

    Thank you Laurie, V and Mary. It was a lovely time and now I am very ready for my vacation. Mary as we all did with caring for our spouses, when it came to the speech, I did what I had to do since Brian was not here to do it. Hugs
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