Recent content by Narrowminded

Thank you Laurie, Mattress is just 3 years old and pillows about a year. I do well in bed, but sitting is more of an issue. I will get the new info on what I need to be doing now from the Chiro today. Probably need to work shorter days for a bit. Hugs

I see it's been a bit of time since I posted. I did finally get rid of all the skunk smell. My back has been giving me issues since right before I attended the above funeral. I'm under care and just had an xray. It seems one vertebrae slipped foward on the one below it. Thankfully it is...

Yes, talking with a trach, speaking valve or deflated balloon, will not change how you talk, so if you have issues now, they will be the same after. It is the loss of muscle in your lips, tongue and probably vocal chords as well. I'm sorry that this will not help you. Do you have a computer...

Welcome Adroit, My husband was on a trach and vent for 8 years. For approx 6 of those, he was able to speak with the trach. He did not have a speaking valve. The way we worked it, as directed by his physician, is the cuff on the trach was deflated and he was able to talk around it. The...

Made it through last week, then this week had to attend the funeral of Brian's Aunt. She was 97, she lived a very good life. Parts of the service were hard, but we went as a family and good times were had with relatives we don't see very often. Life marches on. Came home to a house full of...

It's been a rough week. Our 39th anniversary would have been this past Friday. Times like these I miss Brian more than I can say. I pushed through and I'm ok now. I will tear up a bit, but not as bad as earlier in the week. Will this ever end? I have no idea. I hope everyone is doing...

Grief is fickle. I am out 5 years, and most days are good, however certain times of year are hard. This past Friday would have been our 39th wedding anniversary. Yeah, the week was a mess. I will say finding a counselor/therapist for a one on one is the way to go. It may take a few tries to...

Sea Gunny, I am not in Maine, nor am I on the coast. However, if you'd like to visit, please DM me. hugs

I don't post here often anymore. I lost my PALS 5 years go. He was trached and vented for 8 years. The biggest issue is they keep losing abilities. You've mentioned that your Dad can't move much or change his bed position. If he gets a trach and vent, he would need someone in ear shot 24/7...

Happy New Year Everyone!

Merry Christmas everyone. I pray you all can find some joy in this holiday. It isn't always easy, but our PALS would want us to move forward. Hugs

SeaGunny I didn't get to know you before, as I only visit this forum on occasion now. I lost my DH 5 years ago and I still have time that set me off. We suffered much of what you did with help. My DH's journey was 14 years long, 8 of those with a trach and vent. Because of that I totally get...

Thank you Mary. Yes, the 14 year of Brian having ALS also aged me. I too am still out of condition. I get exercise in, just not in any regular fashion. I keep trying to change that. My worst thing is trying to eat my feelings - definitely NOT good. It does ease up as time goes by, but there...

Thanksgiving will DD was wonderful. However, being home is not good. This week is not good. Thursday will be 5 years since losing Brian. I cannot believe it has been 5 years. It seems like yesterday and also a lifetime ago. Not sure if it is because it is the 5th year, but this evening has...

Hi All, Wanted to pop in and wish everyone a Happy Thanksgiving. If you don't celebrate, I hope you have a wonderful week. I will be headed to DD's. It will be nice to visit them for a change this year. Hugs,