Recent content by mysticunicorn66

Our beloved Ms Pie who I know on many occasions has offered me much neede advice when my sister was on her journey with ALS, has gotten her wings and is now free from the beast. Our prayers go out to her family.

what a wonderful tribute to your Mom. You and your Mom must have had a very special relationship. My condolences on your loss.

So sorry for your loss

So sorry for your loss, but she is free from the captive now...

so saddened by your loss, but love the way that you describe of casting the beast over the cliff. If only we could all do that with the beast to begin with. Only praying for a day where there will be a treatment or cure that will allow that to happen. Prayers to you and your family...

Praying for your family. Glad you were with him though...

So very sorry for your loss, but glad that you could be there for her.

Remember #1...you are a family and you all need to work together to take care of Mom. I can tell you from experience as I was pretty much sole caretaker for my sister initially, that it can be draining. Try to work together in taking care of Mom. ALS is a family disease. It affects the whole...

Seek out an ALS Clinic neuro for a second opinion. That is where I took my sis (US Army Reservist) when local docs were chasing their tails and couldn't figure out what was going on with her.

Amazon is great. That is where I got a lot of stuff for my sis. Got her bed pads (both water proof ones and disposable) from there. I ordered the disposable ones from there by the case at a pretty good price and got her Ensure that way too.

So sorry for your loss. Hold on to the memories. They will sustain you as you deal with the loss. My prayer to you...

So sorry for your loss, Jennifer. Not an easy path that the PALS have and it is heartwrenching for CALS as well. My prayers to you and your family and you cope with this loss.

Siobhan...fly to the angels, love, we will all miss you so much...

So sorry for your loss, Deb. Loss my older sis to this beast as well and my FIL too. So much for a "rare" disease, huh? Prayers to you and the family.

:'( She was lawyas nice to me when going through this ordeal with my sis. Prayer to her family.