Music67
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  • Hi Richard, lovely to see you! I hope you and camille are both well.
    Gee I'm nosy, but I see Diane mentions an Alaskan cruise. Wayne and I are hoping to take our kids on one next year, to see snow etc, make beautiful family memories...
    Take care, God bless you both, Janelle xx
    Hi Richard. Glad you liked your Alaska cruise. We went through the Panama Canal in January - 14 days from Ft Lauderdale to Los Angeles. Loved it, although there aren't really too many places in So. America & Mexico that accomodate wheelchairs, etc. Our travel agent (specializes in travel for those with disabilities) is working on an Alaska trip now. Good to hear from you. Dianne
    Just found wedding pics! Very dapper! Camille you are radiant!
    So glad I found the photos. Happy days are definitely something we all need to share.
    God bless, Janelle x
    Hello to you and your lovely wife, Richard. March 13th is also my daughters birthday! I do hope the weather was kind to you on the day...spring I think? Just? Beginning of autumn for us. Cyclone season too, not that we are affected much. Normally just humidity, rain and maybe stronger winds...Geraldton is one of the windiest places on the planet!
    We were awaiting a cyclone on the 13th and all had to be indoors by 8pm. We made the most of her birthday by going to the beach first.
    I wanted to attach pic but will put it in my album.
    Anyway, the cyclone avoided us, went between us and a small town called Mullewa. Lots of fuss for nothing we thought, unfortunately our neighbours 600km up the road in Carnarvon were wiped out. Kind of put everything into perspective.
    Anyway enough rambling.
    I haven't yet...but I'm going to look up your form of ALS to support you both on this journey.
    God bless, Janelle x
    Hi there, I am reading some old posts etc to 'get to know' people. I'm thinking you are married now? May God bless your marriage with grace, patience, love and understanding. I have (they think!) a rare form of PLS and have had only one bad fall. I'm writing to check your progress to a chair of some description? Hopefully it helps. God bless, Janelle x
    I only got married two years ago, and indeed being married is a blessing... We're OK.thanks Richard...feeling weak in arms,twitching a fair bit,but still funtionable for myself.. Still struggle keeping the house, until a final diagnosis, so a meagre lifestyle..lol. Told our lady from the mnda that I thought mm was what was slowing things down, and off the record in clinics it's a known help....so plodding on, think my next appt in may time..see what that brings☺
    I am very touched to know that you are praying for me every night. Thank you from the bottom of my heart. It's wonderful to "know" a fellow Christian, and I look forward to meeting you in person. My faith shines much brighter and is growing stronger since my diagnosis. "We are more than conquerors through Christ..."
    I am going to try to make it to the support group. Will I find the location in the building, or is there a room number? I look forward to meeting you.
    Charlene Andersen
    Hi! Thank you for writing and inviting me to join your support group in Bellingham. I will try to do that! Is your fiance by any chance related to Kathleen and Dan Pugerude?
    Well...anything you put on your skin will penetrate so you would be getting some of those benefits anyway. I don't think I could get him to eat it...lol not nine tablespoon full
    Hi Music.
    I have been using your coconut oil massages on my husbands legs for the spasms for a few months now. It makes a big difference for him. I even massaged with nothing...and with lotions...but the coconut oil is the winner. Thank you for sharing.
    Washingtonians, if you, friends or fam find yourselves in/near DT Seattle, please come grab some stuff out of our apt. I would rather it go to a PALS than to Goodwill (which I totally respect; our son used to work there). lmgelb at gmail
    Another option is that our niece goes to Western but comes back here for hols and such -- if you are interested in a care package, let me know.
    Hi Richard - sorry for the delay in responding to your kind message. I was dx'd last Sept with symptoms for at least a year. Mostly arm & leg weakness. Hard to breath when laying flat - I use a bipap at night. Voice was fine 2 weeks ago and now not so good at all. I recorded my voice already - using ModelTalker - glad I got that done. Live with my husband & he's in good health, but is 14 years older than me, so that is a concern. We are going on a cruise thru the Panama Canal in January - looking forward to that. Hope you are continuing to do ok --- Dianne
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