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I want to send you the coupon for Rilutek. My reply on the forum was sent to moderator. You can reply here, or send me an email to [email protected] with your address and I'll ship it. I think $50 savings is a lot. I don't think I'd put my address public, so I recommend emailing it to me.My husband still walks, but falls a LOT. He cannot be understood very well. He cannot do for himself, as he has not much use of his hands/arms. He has gone from a little over 200lbs at 6'3" to 145. I can't emphasize enough, the need to get your husband on a high fat diet. It will be contrary to all you've been told about healthy diet, but for pALS it is a life extender. The sooner you fatten him up, the better, because if it gets to the point he has difficulty eating, he WILL lose weight. You may want to visit the ALSTDI website, if you don't already know about it. They are in Boston. Go to the ALSTDI forums and search ketogenic diet.I'm very sorry about your husband. My husband was diagnosed in 06. We have a son that just turned 11. Not fair is it? After you have posted about 10 or 12 times, you can private message. I'll be happy to give you any help I can. In the meantime, I hope you will find the info you may need on the forum to help you in this journey. Are you a native Texan? Oh- and if you need to search for info on the forum - go "advanced" or you will never find what you are looking for.
Welcome, so sorry about your husband dx. But glad you found us here, so many wonderful supporters, with love and compassion to help. ((Hug)) -
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