MrsClose1

It is with a sad broken heart. I am letting you know my husband passed away 2/9/12.

Mrs. Good day to you, yes the frustration can go through the roof at times. The folks here are so very helpful and you will find comfort, love and caring people here. We are all this journey together, arm in arm. Love & Hugs

Hi Mrs, Welcome to the forum. so sorry you had the need to search us out. The best place to post is on the forum page to get answers from others. Hope this helps you out. ((Hugs))

I have a question. I need help with my husband can not speak and he experienced a very scary morning. He woke up covered in blood bipap mask and all. As always stubborn man refuses to let me take him to the hospital. Just wondering if maybe, sinus and bloody nose not being able to swallow his blood could it have pooled and just run out of his mouth since I cleaned him up this morning and we washed his mouth out no signs of any more blood. Has anyone experienced this kinda thing. I do have to add my husband got his peg on July 14th and he also suffers from ulcers so this bothers me. If anyone has any ideas please let me know.

Hello, my husband was diagnosed with PBP in January 2011. He started losing his voice in September 2010. Our first visit to the neurologist he told my husband he had a stroke by our third visit. I could tell by the Dr. demeanor that something else was terribly wrong. He sent us to the ALS Clinic to a Dr who specialized in this disease. My husband is a strong man his arms and legs were perfectly fine. The only thing that he had complained about over the course of 5 years were his knees and lots of extreme cramping all over his body especially the legs and back muscles. Here we are now June 2011 and my husband speech is no longer, his legs are starting to weaken, he needs a peg eating & taking meds is taking a toll. My question to you is. I would like to take some time off from work to spend with him while he is still able to walk. I am just afraid that when I go back to work this will depress him more or should I just wait till he really needs me at home. So confused.