Recent content by mrs.eptwa

  1. M

    limb onset ALS

    thanks for the replies. i did contact the alsa and they brought me a manual wheelchair and are going deliver me a pwc and hospital bed. they are wonderful and so are you guys - thanks for all the great advice. i will look into voice apps
  2. M

    limb onset ALS

    Thank you all for all the warm welcomes. I am not a vet. And i do not have a wheelchair yet, but i am ready for one. I am going to call the local alsa tomorrow to see if they can loan me one. My big question for today is: is there an easier way to type and control a mouse? it is very...
  3. M

    limb onset ALS

    Hello everyone. I finally received my official diagnosis on 11/2/2015, but have been 99% sure that I had ALS for many months now. The worst part has been telling my family - it feels like I am crushing all their hopes and dreams for me. My biggest concern is for my kids, especially the little...
  4. M

    high levels of protein and ketones in urine

    Sounds like good news to me. Thank you for the answer and for your time. :)
  5. M

    high levels of protein and ketones in urine

    Does anyone know if high levels of protein and ketones in urine is typical in ALS? I tried searching the internet but did not find an answer. Thanks in advance.
  6. M

    33 years old, weakness, falling

    Thank you for your patience and the thorough explanations, I think I finally got it! Sorry it took so long, and thanks for bearing with me... Will update in Nov and try to stay away from here in the mean time :)
  7. M

    33 years old, weakness, falling

    Thank you both for your responses. Do you think those findings sound consistent with ALS?
  8. M

    33 years old, weakness, falling

    Thanks Nikki. The neurologist has no idea what it could be and was so rude to me. He did not explain anything to me about his conclusion, but the whole conclusion says, "Today's results, as well as those from the 7/23/2015 study of the left arm, suggest a widespread polyneuropathy or...
  9. M

    33 years old, weakness, falling

    Had emg of right arm and left leg today and was going to post it but can't add attachments. EMG "reveals signs of diffuse acute and chronic denervation in all muscles tested". Now I just have to wait for Nov. 1st... Any thoughts? Thanks
  10. M

    Thanks for your help and the advice. I have already applied for 100k no medical exam insurance...

    Thanks for your help and the advice. I have already applied for 100k no medical exam insurance last night and spoke to them on the phone today, so I'm waiting to receive something in the mail from them. I'm sure 100k isn't enough, but at least it is enough to bury me... just in case. Sorry to...
  11. M

    33 years old, weakness, falling

    Mike: Thank you for the advice regarding insurance, and I appreciate your time :) I won't see a neuromuscular specialist until Nov 1st, so hopefully I will be insured by then. Take care
  12. M

    33 years old, weakness, falling

    No, my handwriting is getting bigger and sloppier, as well as taking much more effort. My handwriting is hard to read and looks like a drunk person wrote it, but now even typing is getting difficult.
  13. M

    33 years old, weakness, falling

    Thank you for the response and for taking the time to read my long post. I understand that you are not a doctor and that no one on this forum can diagnose me, but I do appreciate your input. I am clinging to the fact that my pain and bladder symptoms seem to point away from als, and I read that...
  14. M

    33 years old, weakness, falling

    I am a 33 year old woman, and my symptoms started at the end of April 2015. First my left arm felt strange - tingly, pins and needles, like the circulation to my arm was being cut off, but never numb. Soon after that I noticed my left arm and hand were weak, I could no longer fully extend my...
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