Recent content by mrluu55

  1. M

    I was finally diagnosed after my father

    This is my previous article link: https://www.alsforums.com/forum/do-i-have-als-als/43074-my-sister-i-have-same-symptoms-same-time-after-my-father-diagnosed.html Hello everyone, I returned after being diagnosed after 6 months of symptoms and tests. My neurologist concluded MND disease after a...
  2. M

    Hello, how are you now? I have all symptoms like you and they get worse day by day.

    Hello, how are you now? I have all symptoms like you and they get worse day by day.
  3. M

    CACNB4 mutation

    Nikki, I have read your research about ALS mutations in calcium channel as the links below. https://alsnewstoday.com/2016/08/04/ALS-Mutations-in-Calcium-Channel-Disrupt-Deep-Brain-Neurons-Contributing-to-Movement In the Czech Republic, there is a center specializing in research on this issue...
  4. M

    CACNB4 mutation

    Hello everyone. I come back with an update about genetic test. They found CACNB4 gene mutations on my father with CACNB4 variants: NM_001330115,: exon6,: c.G518A,: p.R173Q, Chr2. That's a autosome dominant and I'm 75% able to carry a mutant. I'm currently waiting for my own genetic test results...
  5. M

    Hello, How can i contact you? I want to buy Tobii Dynavox or my father.

    Hello, How can i contact you? I want to buy Tobii Dynavox or my father.
  6. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    Sorry I do not want to make people worried but my sister and I have the same symptoms as my father made me learn. On many documents proves that als can come from retrovirus. You can find many related articles in the following link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3723705/ I think we...
  7. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    I am very sorry but you said that the mutation rate is 50/50 but your family's statistics seem to be much larger than 50%.
  8. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    Thank you Nikki, I have read about retro virus. Can it spread in mutant partners? Patients and family members with the same mutant gene can be infected by kissing or sharing food. What do you think about this?
  9. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    hello nikki, i am very thank you. Could you please show me how to send private messages to you to ask some questions? Because I think my case is very similar to that of your family.
  10. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    the neurologist said "he thought about FALS but it is need times to diagnose". I have alot of symptoms indicating als even my EMG has not appeared abnormally. My symptoms are crawlng worm sensation , twitching everywhere but mainly in the limbs, pain and weakness in the muscles on the left.
  11. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    Thank you Laurie. I also think it is unusual for me and my sister. But, the symptoms are real and the reviews of the neurologist are real. So I have to ask people who have experience on this forum. I have read that the disease can start early in later generations. I've been through the bad...
  12. M

    For Sale: Tobii I-12, ResMed AirCurve, Hill-Rom Cough Assist

    <quoted text removed> Hello, I want to buy but i live in Vietnam. May I will ask someone to come to you to get. could you please give me the way can i talk to you? I look forward to your response. Thank you very much.
  13. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    Hello everyone, I am from Vietnam. My father 63 years old, was diagnosed ALS 4 months ago. Unfortunately I (33) have symptoms same with my father: such as muscle twitching, feel weak and numb at left hand and leg for 2 months. I think about genetics and I had visited some hospital in Vietnam...
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