Recent content by mrd1956

  1. M

    ALS registry

    Hello: this may be a no-brainer but I wanted to ask anyway. Is it safe to say that most of you would advise joining the ALS registry if indeed you have been diagnosed? Or does it pigeonhole you and possibly disqualify you for later trials that may arise? Thanks very much
  2. M

    Dear Ulf, I read your post of August 2014 which was very informative. Thank you. I have had...

    Dear Ulf, I read your post of August 2014 which was very informative. Thank you. I have had ALS for five and a half years as a slow progression. I am very interested in getting on the MS medications you tried. How would you recommend my doing that? I hope you're doing as well as can be...
  3. M

    L-Serine

    Fair enough. Thanks for your input.
  4. M

    L-Serine

    could the protein mis-folding be the accelerator?
  5. M

    L-Serine

    Hi All: Has anyone had any experience with the amino acid L-Serine and its possible relationship with protein misfolding?
  6. M

    Another Website that May Benefit

    having your up checks gives me even more confidence in the site. thanks
  7. M

    Another Website that May Benefit

    I am more interested in other patient's opinion of the website and whether or not it could prove to be of any benefit to them, than to try to ascertain who the doctor is.
  8. M

    Gilenya versus Rasagiline

    Greetings: I need your opinions and input if possible. I have the opportunity to participate in a phase 2 clinical trial in either Gilenya or Rasagiline, and I don't know which one to give the edge to. My neurologist has given the thumbs-up to both. Any suggestions? Thanks very much.
  9. M

    Causes of ALS?

    Yellow Fever?
  10. M

    Another Website that May Benefit

    Hello All: I came across the website ALSUntangled.com - Home. It downgraded some therapies which came as no surprise. It gave an up check to coconut oil, so I guess I will continue to ingest that goo. Interestingly enough my neurologist is among the contributors; no I did not hear about it...
  11. M

    Former French Tennis Professional has ALS

    Thanks for the replies, everyone. obviously we all have to watch our funds to help with our own health problems, but if anyone wants to donate to Jerome Golmard, there is a link on Google.
  12. M

    Former French Tennis Professional has ALS

    You have some interesting thoughts Bluedog, although I don't know if it is necessarily as obvious as you indicate. If exercise was the only culprit, I think we would see many more MND cases. If anything, my neurologist recommends regular exercise, albeit not overly strenuous, and if I go...
  13. M

    Former French Tennis Professional has ALS

    I'm praying for you Max. Obviously you have been very diligent in your researching. I'm betting on you. Keep the faith.
  14. M

    Former French Tennis Professional has ALS

    That makes sense Barbie. Thanks.
  15. M

    Former French Tennis Professional has ALS

    I just read today on the Sports Illustrated website, that former tennis professional, Jerome Golmard was diagnosed with ALS this past January. He was ranked as high as 22 in the world, so he obviously had prowess. This story really hit home, because prior to my own diagnosis of MND in 2010, I...
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