Recent content by Morgannon

Guys I'm so sorry to post but after my normal EMG test now I'm having serious fasciculations at my injection sites. They are just going going going. Woke me up out of a somewhat sound sleep. Please forgive me but I didn't know where else to go about this. I know pain is a common side...

Ok guys. Got my results. They only tested my right arm and right leg. No abnormal findings except for carpal tunnel and ulnar neuropathy I. The right arm. I realize that I've worn out my welcome here. So im leaving for good and will not be returning unless there is some sort of profound...

Laurie really quick - I was going over some old posts I made and I noticed you said PALS dont often use breathing cuirasses...any idea for the reason? I'm trying to find a maskless option for my sleep apnea and this is the closet I've been able to come.

On a happy note, my 10 year old son and I are watching Boss Baby while snuggling on the couch. I highly recommend this movie it is ridiculous :D

Best; I can't tolerate the BIPAP. The mask hurts like hell, I feel like I'm suffocating, and when the pressure is turned up to where my doc wants it to be everything in my throat starts spasming/flapping. I swallow convulsively over and over. If I turn down the pressure then things calm down...

Thank you - I really don't want to chance the five hour drive because I'm having such breathing difficulties and have a BIPAP that I cannot tolerate as my only "protection" during the drive. I'm thinking of telling Cleveland I got in locally and am worried about my safety during the drive...

First neuro visit done. No atrophy or weakness noted in upper or lower limbs but had brisk reflexes. Memory is a little spotty. Upper arms a little uncoordinated - did the touch my nose touch her finger test at fast as possible and the right hand wasn't hitting her finger spot on so there's...

Hey everyone - sorry to ask this but I need some advice on a testing location. I have the option of getting tested locally in Indianapolis at a decent neuro group or getting tested at Cleveland Clinic. Both appointments are tomorrow so I have to pick one. Is the test accuracy highly dependent...

Hey man I just read your symptom list and it's so close to mine it's scary. I'm going to get a nerve test for ALS and I will let you know if I test positive. Are you getting such a test? Have you had any testing besides the usual scans and blood tests? Best of luck!

Guys I am so sorry I said that. I was scared and not handling things well. Please accept my apologies - I do not want to upset or offend anyone. I was just despairing that I could not get in to Cleveland Clinic. Luckily they got me in at the Clinic next week on an emergency slot at 9 am. I...

Sorry - you have a very good point. Will talk to sleep doctor.

Hey everyone; Cleveland Clinic is a bust. No neuro appointment before 3 months out. Turned around halfway there. Edit: removed upsetting and insensitive things I said in panic and fear. Update: going in to CC for EMG on 1/31.

Thank you so much for listening guys. If I have this disease then im happy at least that I have you guys. If I don't have this then thank you and I apologize for bothering you. Im upset I can't handle the epap at all. Feels like an insurmountable amount of air. That's why im hoping I can...

Thank you guys. I'm heading to Cleveland Clinic this weekend because breathing is so difficult. I got out of bed for about an hour to do some light housework and now I'm flat on my back gasping. O2 is still normal but my abs are cramped and stiff and I feel my diaphragm spasming. Cleveland...