Recent content by Montycapuleti

thank you all for your posts..we have gotten my brother to be transferred from BI to MGH. from your posts and other research, MGH seems to be the leader in ALS care for our area. Our first appointment is tomorrow, we hope to have some conversation to see if he is a candidate for one of the many...

thank you again, nikki!

nikki, thank you for your words and your information. we are going to get a 2nd opinion at mgh and most likely will move over to there (my sister is a nurse practioner in radition oncology at mgh, so she is researching the right ALS neuro to see)..They said he is not at the beginning, but not...

Hello all My older brother, a 60 yr old man who was born deaf, was officially diagnosed with ALS, earlier today...as a family, we are trying to get a grip on this shocking news... He was diagnosed at Beth Israel Boston. He has weakness is his thighs and left arm..He began rilutek tonite...this...