Recent content by monica

Thank you for your imput. My tube is quite long but since I do "bolus" feeding I don't mind the length. I usually just tuck the tube under my clothes. I hope I can continue ballroom dancing and feel the tube might need to be secured better.

I have just been diagnosed with ALS. I already have trouble swallowing and have a feeding tube. Am still able to walk but get weak rather quickly. Does anyone have any tips on how to secure the feeding tube when not using. Also wondering how quickly this desease progresses. Since I am 73...