Recent content by Mon

  1. M

    Hi Hal, I agree. I think weakness in arms & shoulders would strain the neck. I hope you are...

    Hi Hal, I agree. I think weakness in arms & shoulders would strain the neck. I hope you are keeping active & well. Dad is doing fairly good. We renovated a bathroom, a shower vs a tub and lower switches/plugs and lower sink countertop. We saw snow today, he doesnt tolerate the cold weather well...
    • Mon
    • Profile post comment
  2. M

    Pain

    Hi everyone, Ive been on a number of times over the years. My dad has flail arm Als. We are 1.5 years into dx and 3 years onset. Recently he is complaining of neck/shoulder stiffness and pain and some pain in left arm. His neck is not leaning forward, still seems strong. Is anyone experiencing...
  3. M

    Hi Hal. We messaged last June..my dad has flail arm. I hope you are doing well and managing. I...

    Hi Hal. We messaged last June..my dad has flail arm. I hope you are doing well and managing. I wanted to ask you if you experience neck stiffness? Dad is having muscle stiffness in neck for a few weeks. It could be related to doing things awkwardly, we just arent too sure. Its not weak, just...
    • Mon
    • Profile post
  4. M

    Alternative treatments

    Thanks Nikki i didnt notice. I didnt find much on it except those articles.
  5. M

    Alternative treatments

    Has anyone tried or heard of Radio Electric Asymmetric Conveyer(REAC) as a type of stimulation in dysfunctional motor behavior? Thanks in advance for your time.
  6. M

    It is sad but we have to look at it like we are lucky within a unlucky group. After seeing this...

    It is sad but we have to look at it like we are lucky within a unlucky group. After seeing this disease im so grateful dad can walk..talk & breath easy and eat.
    • Mon
    • Profile post comment
  7. M

    That is fantastic news, im happy to hear. My dad is similiar, still all arms, and they have...

    That is fantastic news, im happy to hear. My dad is similiar, still all arms, and they have continued to weaken, however he can still write, eat himself and do most personal care. Hands are definately weaken as well, especially if he over does anything. Legs, breathing and speaking all strong...
    • Mon
    • Profile post comment
  8. M

    Hi Sassy, How is your husband and yourself doing? We chatted last spring and you mentioned your...

    Hi Sassy, How is your husband and yourself doing? We chatted last spring and you mentioned your husband has flail leg..my dad has flail arm.
    • Mon
    • Profile post
  9. M

    Enjoy your road trip & hiking.

    Enjoy your road trip & hiking.
    • Mon
    • Profile post comment
  10. M

    Circumstances are doing or trying.

    Circumstances are doing or trying.
    • Mon
    • Profile post comment
  11. M

    Thats just great that you are hiking. I think its such good therapy keeping active for mind and...

    Thats just great that you are hiking. I think its such good therapy keeping active for mind and body. I appreciate your reply. Exact same as my dad, all arm, hands, shoulders. Very similar. Im a daughter. I try to see what others in similar curcumstances arw
    • Mon
    • Profile post comment
  12. M

    We have not heard much about the new drug or its availability. I dont think my dad is overly...

    We have not heard much about the new drug or its availability. I dont think my dad is overly interested in these drugs since they dont promise a whole lot. After the experience with ivig which was tried to rule out MMN he is skeptical. Like you radicava infusions 10days a month didnt appeal to...
    • Mon
    • Profile post comment
  13. M

    Have a good trip. I agree, keep moving..its good for you. Toronto has cold winters and i know...

    Have a good trip. I agree, keep moving..its good for you. Toronto has cold winters and i know Boston is similar, maybe even more snow. Dad does find the cold makes symptoms worse as well, ive heard a few people mention that. Have you tried any if the meds? Radicava or the other Edavarone? We...
    • Mon
    • Profile post comment
  14. M

    Dad used the word frustrating to describe it as well. I can definately understand that. Ive...

    Dad used the word frustrating to describe it as well. I can definately understand that. Ive witnessed this from the start and ive seem the losses. He was a every day 18hole golfer in summer months and no longer can swing..He also lost the ability to drive a year ago. We live in Toronto Ontario...
    • Mon
    • Profile post comment
  15. M

    Question regarding pain

    Thanks Hal for your reply. Ive sent you a message directly.
See more
Back
Top