Recent content by MommyRissa

This is my last post but I thought this needed to be said.... I know that answering this part of the forum is extremely difficult for some. I know that some people don't even want it here anymore, and I can understand that. But I think that the problem is that none of us who come here...

Truly I am sorry for my insistence on posting here when I have been told that what is wrong with me is not what I fear. My life since July of last year has been difficult to say the least. I have had a spinal surgery or cranial surgery every month for seven months now, due to all the fun...

I'm not sure if any of you remember me or not, but I have been here before. I hope you all had happy holidays. When I first came here it was because I had what I thought was right side weakness. I in fact had none, but I did have pain and twitches. After quite a few tests I was diagnosed with...

So far I've been diagnosed with Fibro, Carpal Tunnel, and BFS. I had one of the medical staff at the doctor's office suggest MS. I prefer nothing if possible. I'm so desperate I've even considered taking the antibiotics that started all this. I haven't been tested for Lyme yet though. Nighthawk...

You sound just like me but I'm eight months in and still don't know a thing. When is your EMG scheduled? Mine showed nothing abnormal except for reinnervation that was not chronic and no denervation. This is supposedly because of Carpal Tunnel. How did the neuro judge your weakness?

Hey all, I've been here before, about eight months ago, and you were all very kind and helpful. I couldn't have asked for better advice or reassurance so here I am again seeking the same thing. I know how precious your time is and I appreciate it. I have checked in on everyone from time to...

I saw where you said that you have been doing strength tests at home and while it's comforting, you may do more harm than good. Trust that if you had clinical weakness that you would not be able to do any of those things. The heel to toe walk would be physically impossible. Have you ever sat in...

Have you given any thought to fibromyalgia? With multiple EMGs that are clean and nothing alarming on a physical examination, it's extremely difficult to be persuaded that what you have is ALS/MS. There are a lot of things that cause pain. I've had body wide pain and twitching for a month or so...

John, It's okay to be afraid. It's okay to break down. It's okay to worry. Stress and anxiety can manifest things in your body that you never imagined possible. I'm not saying that's what's happening, but try to keep in mind that everything could be exaggerated by what you're feeling...

Yep, shouldn't have read that one. *facepalm*

I mean simply that you can have weakness and atrophy or have weakness with atrophy and not realize that you have the atrophy part. I may be incorrect in some way and if I am, I don't mean to misguide you or give you ill advice! ALS is complicated and rare, and Grateful is right. If you are...

Really, if you think about it there are side effects to all meds, or shall I say possible side effects. A lot of times the benefit outweighs the risk and that's reasonable, but for me, Cipro was too strong and all for naught. And therein lies the problem. I have this... inability, for lack of a...

Mod land! Check back

There is a serious flaw in healthcare with doctors prescribing antibiotics for everything. They're like the go to med. Have a cough? Take Amoxicillin. Have abdominal pain? Take Flagyl AND Cipro. Have a sore throat? Take Azithromyacin. It's ridiculous, especially since antibiotics are useless in...

Bug, Are you currently experiencing fasics with atrophy? This has been said a thousand times before, ALS is insidious. It sneaks up on you and quietly goes to work without you having any idea that something is happening. Some people do notice fasics first, but they do have other things going...