Recent content by mommychops

I lost my 44-yr-old son after caring for him at home for 19 months. i feel blessed that i could 'have him' during that time. i feel blessed that he went quietly and peacefully in his sleep. what is helping me now is to remember him from before his illness. (i also pretend that he's just on a...

He is free and flying. You will be able to remember him from the good times.

re the zoloft, i'm with you.

It's been only one week for me, but i try to focus on all the things to be thankful for. My pals died in the early morning hours. i was right next to him...and listening on the baby monitor. what i was hearing was the bipap, not my son. i am so thankful that he died peacefully.

amazing re the 'body scan'. 1st the body, then the bed, then the array of machines. he could no longer move anything. he did not want me to be his primary caregiver. let me know that he wanted me to be his mom. i picture him free and flying.

i just lost my 44-yr-old son, who had been living with us for the last 1-1/2 years. the only way i could handle it was to be thankful for the good things...that he was not in pain...whatever i could be thankful for. zoloft helped, as well. he used a laser pointer and a core board. both...

he had hundreds of loving friends (yes...hundreds. he was a musician.) this is what i forward to them this morning. ----- From me, the mom. i've always said to myself that if anything happened to my boys or happened to peter, i would just pretend they were on a trip. that would be the only...

my sweet 44-yr-old son (PALS) died last night in his sleep. i turned him at 2:30 a.m., adjusted his pillows and bipap, he smiled and nodded 'ok'. that was it. it was so sudden. we knew it would happen, but not so quickly. and not so quietly. prayers couldn't keep him alive, but maybe they...

since my PALS can no longer use his hands, the pwc with JOYSTICK has been a god-send. wheelchair 'guy' had to come to house to set up the joystick so my pals can actually stay in bed and use it. we back up the pwc to the bed, put the collar on...and what we call 'spider man.' pals can use his...

thank you re hole in urine bag. nurse came out from hospice and checked it out for us. we still have problems, but that hole was not it. re the vocal chords, my PALS could not make any sound for about 2 weeks. after the 1-1/2 hrs of cough assist and suction, he could! the nurse said she...

ANOTHER QUESTION TO CALS: my PALS has not been able to make ANY sound for about 2 weeks. saturday i was brushing his teeth and he was not sitting upright enough. saliva and toothpaste dripped down his mouth (he takes NOTHNG by mouth). that led to one and a half hours of the cough assist and...

a quick question to any CALS: there's a little square with a hole in it in the top left of my PALS urine collection bag (bard). it's not open. SHOULD IT BE OPEN?

when i had to tell people about my son's (PALS) situation, i said "i need to tell you something, but please do not ask me about it. i can't bear it." they've all been wonderful. "just remember we're here" my PALS has a private group on facebook, and he shares with a select few. i still...

mawe: my pals is the same. nothing ever has been this difficult. thank you for sharing.

my 44-yr-old son is my PALS. he's been living with us for a year and a half. the only thing he can now move is his head. we use a laser pointer and a core board for communicating, and his wheelchair has wifi to his computer, so he can use the joystick to do anything he wants on the computer...