Sharon, you helped me a lot over the past year. You were a great listener. I'm so sorry I dropped off the face of the earth due to stress with my husband's father the last 2 months. I thought about you often. I was going to write you last week and didn't and for that I'm regretful. I ♥ you...
Knowing the progression is worsening, I was trying to come up with a game plan on how to prepare them for the changes and the inevitable. When my mom died, he would even look at her picture for a few months. :(
It breaks my heart to see how its effecting him, because he definately understands a lot, enough to confuse and scare him. The emotional maturity isn't there yet though. My 5 year old is very resilient.
Thanks for that link!
Advice please on now to discuss ALS with my 7 year old? He's having a tough time. Sometimes he is open to talking about it for 2 minutes and sometimes he is like a locked door. Certainly back off, not wanting to push him.
How'd you guys do it? It's his grandfather who has ALS.
Hey, we are from NC! Did your doctor say say anything about heart patients of his who have taken it specifically? We read the same scary stuff you did.
I just read Hopeless by Colleen Hoover. AMAZING! I just finished The Edge of Never. Can't remember the authors name. Its not a common one. I really liked it too. Luckily, my husband doesnt complain about my reading habits $$$$
I may not get to bed! It's already almost 4:30am now.
I'm planning on watching the webinar. We have heard the same thing here. We asked a pharmacist friend about it after we read for ourselves. My husband talked to his gp about it Monday while he was there getting some meds filled. He said you have got to be careful with anti-arrhythmia drugs...
Please sign and drop by and visit us on Facebook too! There is a group page and "like" page. Let's keep this thread bumped up high so everyone sees it!
:)
Allison, I hope you can get back here to be with your Dad. That has to be hard. We are only 1.5 hrs away but, I know my husband will struggle as things get worse with his Dad.