Recent content by momals2008

  1. M

    How ALS changed me

    My mom was diagnosed in 2008 and passed November 2013. JUST wanted to share how ALS changed me.. even though my mom is gone I still consider myself a caregiver and not a past cargiver because I think about all those suffering from ALS everyday.... just today I caught myself worrying about the...
  2. M

    Hi there thanks for ur prayers Ive been meaning to thanks everyone. It almost a month since my...

    Hi there thanks for ur prayers Ive been meaning to thanks everyone. It almost a month since my mom passed and I still think I hear her vent or this sound she used to make... I have been trying to stay busy but in the evening its a bit hard... I have three kids ages 19 13 and 5 they r doing well...
  3. M

    Thanks everyone it feels good to know u guys understand what im going thru. I feel a little bit...

    Thanks everyone it feels good to know u guys understand what im going thru. I feel a little bit better today but honestly on Monday when my mother passed I really lost it. I know my mom is in peace
  4. M

    My mom passed away yesterday although I know she is not hurting anymore I cant believe she is...

    My mom passed away yesterday although I know she is not hurting anymore I cant believe she is gone I have never been away from my mom. Please let barbie and the others know my mom name was germania cruz
  5. M

    My mom is home with my 13 year old my sister and cousin couldnt go sit with my mom because they...

    My mom is home with my 13 year old my sister and cousin couldnt go sit with my mom because they were in their homes cooking......my son is in college and if they admit my daughter her dad will stay or take turns cauae he ia a very weak like my sister and the rest of the bunch
  6. M

    Well the np ordered some stuff for the nebulizer its supposed to loosen the mucus and the wound...

    Well the np ordered some stuff for the nebulizer its supposed to loosen the mucus and the wound on her back now has an oder so they r calling the doctor I noticed it but qhen I told them they disnt notice it until today. My five uear old was sent home from school yesterday for a bad cough I...
  7. M

    Need help with valve on tube

    Hello ive had this happen to my mom whe 78 I usually take her to the emergency room and they changed the tube then take an xray at bedside ti make sure it is in properly. Sometimes when the tip break off I can still closs it with the piece that was there. I spoke to a hopice nurse who told me...
  8. M

    Did the diarrhea go away

    Did the diarrhea go away
  9. M

    Im going alone I think im much stronger when im alone because when we went to tje cemetery a few...

    Im going alone I think im much stronger when im alone because when we went to tje cemetery a few years ago my sister was crying im gonna go alone I think cause I want to make sure that I sign the papers and that under no circumstances they have an open casket even though im not planning on...
  10. M

    Wow really I thought the imodium would help. Thats is horrible. Did u ask the doctor if they can...

    Wow really I thought the imodium would help. Thats is horrible. Did u ask the doctor if they can give him anything to help. Yeah at what u said about when im tired everything brothers me im like that. I stop going to c thw therapist that was taking too much of my time... im gonna try to go thia...
  11. M

    Once my mom passes she will be ok when I think about being bedbound and attached to a machine I...

    Once my mom passes she will be ok when I think about being bedbound and attached to a machine I feel so bad for her. If it were me I would be angry all the time
  12. M

    ALS is so horrible I pray that I don't get that disease I think about that alot that what if I...

    ALS is so horrible I pray that I don't get that disease I think about that alot that what if I get als. I guess because im so much like my mom... sometimes I cry and then other times I feel like I can't cry anymore. Im just angry do u feel that way? I wish the holidays were over already. The...
  13. M

    Good morning I giess its easier to clean my mom since she is so small. My mom has no fat at all...

    Good morning I giess its easier to clean my mom since she is so small. My mom has no fat at all. What I do is turn her on her side clean her with baby wipes the ones from name brand prevail are huge and do a good job they cost three dollars here in nj. For the smell I use a bit of dial soap or...
  14. M

    Oh woe that sucks. What do u think is causing it? Medication or food. When my mom would get it...

    Oh woe that sucks. What do u think is causing it? Medication or food. When my mom would get it I would give her imodium it works fast. My mom stop using a bedpan in 2010 she wears diapers she didnt want to but hadno choice she couldnt control it anymore. Its hard to tell someone they have to...
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