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  • Hope im not talking to much I just wanted to add one more thing do u feel like u get angry or just dont want to talk to friwnds or family some times I have become that way I have a friend of 17 years and I pretty much avoid her now because I feel that she cannot relate to anything I am goin thru like when she complains about silly issues I think is she nuts look at what im goin thru
    When u give ur husband the morphine does he sleep all day. I asked the rt therapist how would I know if my mom is dead since the vent will keep breathing for her and he told me that I would have to check her pulse and a nurse would have to check her also that worries me alot like that my kids will go to say good morning and my mom be dead I dont want them to go through that I dont know what to do like what would u do would u send to a neighbors house or what. I think about death alot and the different scenario like what do I do call my family not call my family I dont want them to make a scene like a circus my kids have been thru enough.... do u think that way sometimes. One day someone told me my mom is holding on to life and that I need to tell her its ok to go home I got so angry I dont think its up to my mom its up to GOD and only he knows when she is ready to go.... I get angry that there is no cure for this disease with so much technology and advances in medicine
    Did u interview the rn u told me about. Maybe u can look up the program called personal preference if they have it in ur state they will pay for u to hire a cargiver. Ur husband was in hospice how long ago
    I do feel like iam watching her die and also I fear that in the morning when I check on her she will be dead but after all she has been thru I would want her to go peacefully and not with a ton of people screaming around her. My family is dominican and very dramatic one of my aunts passed out outside my home door while my mom was being taken to the emergency room which confused the paramedics
    I asked the rt and a few of them say that its notmal the mucus leaking under the trach but I dont think it is. I had to call the ambulance and they took her to the emergency room. The doctor changed the trach and now we r waiting for an ambulance to take us home. The np said she is goin to refer her to hospice again and explain she is on a vent and peg tube but her condition is worsening. My mom doesn't have a dnr but if she is accepted to hospice she will have one. I do think im watching my mother die I also feel like when people c her they r shocked she is alive
    As a matter if fact, I called his ENT yesterday because he has a leak in his trach going next week. Dread it for him. When he was on hospice, they did prescribed morphine but his current doctor prefers Lortab. You do have to be careful because of her weight. The only difference I see between them and home health is they will pay for most things and provide an aide 3 days a week just to bath him. With HH I get 1 day a week for bathing that's all. How is your mom today? Do you feel like you are watching her die a little each day? That's the way I feel. Isn't it heartbreaking! Didn't have to wake up with him last night. What a difference a good night sleep makes. Yes I do have mucus leaking and I'm not sure why. Some days it's worse than others, I'll ask the ENT next week. I'm not sure in SC how long you can stay on hospice. I've heard up to 2 years. Of course they have to re evaluated every 3 months.
    I decided to take my mom to the hospital for a trach change I called the surgeon to check with him to c if he would be in the hospital today. My mom's trach is long over due and last night ihad a dream that it popped out of her neck and that she suffocated so im goin to have it changed asap sounds strange but I pay at of attention to my dreams I always believe they mean something.
    When they say its ok for hospice I would want them to come to my mo. Not my mom go there. The doctor doesnt give my mom morphine yet says its too strong and that she is so small so we have to be careful with pain meds. Its 4am just suction her seems her mucus is getting thick. Do u ever have mucus leaking from under the trach. ... I m having that issue I think im gonna take her friday to the hospital to have it changed she hasnt had it changed in over 6 months.
    My name is Canadian its the name of a park in canada. Not sure y my mom named me awenda as we are not from canada we r dominicans. I am not sure where you can post I think I added a few details in the about me tab... no my mom isnt on hospice the np says that she spoke to hospice and since my mom is on the vent and has tube feeding they want to makesure the time is rigjt for hospice because they have a time limit of how long u can stay in hospice
    My name is Canadian its the name of a park in canada. Not sure y my mom named me awenda as we are not from canada we r dominicans. I am not sure where you can post I think I added a few details in the about me tab... no my mom isnt on hospice the np says that she spoke to hospice and since my mom is on the vent and has tube feeding they want to makesure the time is rigjt for hospice because they have a time limit of how long u can stay in hospice
    Awenda-that's an unusual name. I like it. I'm sure his weight management is because he got his peg tube early. You can read my Blog and see the whole story. I told you I'm not very good at this computer. Where should I post my story? By accident, I found out you can cut and paste. I have a wonderful couple that go and get groceries for me. My sister goes to the pharmacy for meds. Is your mom on hospice? I also rely on my faith. I could not go through this journey without it. I thank The Lord everyday for getting me through the day and ask that he get me through tomorrow.
    I like to help people although at times I feel overwhelmed I have an neighborhood who is 88 and I take her food and check on her everyday. My mom gets 5 cans of jevity but I think that maybe it was too late when she got her peg she was under 100 pounds. My name is Awenda by the way I never mentioned that.
    gets nervous and they feel more comfortable having her in a trauma center. I really hope u can get the help u need do you think u could someone who is styuding to become a nurse it might be less expensive. I have heard of people getting nursing student to take care of their love one. I couldnt afford a nurse they are very expensive. So how do u go food shopping? In june I cut my hair really short pixie because there is no way I could go to a beauty salon.. maybe you can reach out to the als guardian angels and they could help u get a caregiver so u can rest. They have grants.... im not sure the location of her pain because when I ask her sometime she doesnt blink back she gets stares at me. Sometimes I think she is tired of her situation.
    I will pray for u I have alot of faith in GOD. Sometimes I go to an early service on sundays at 8am it helps so much the church is like two blocks away from my home and I ask my son or daughter to sit with my mom. Whwn my mom gets her feeding tube changed or trach changed I call 911 and the ambulance comes if I try to have it schedule they dont see her fast enough and she suffers. We dont go to the doctors office we have her seen in the emergency room because everyone
    Not sure how I have maintained his weight. He get 5 cans of fiber source hn. 2 in am 2 noon and 1 in pm. Thank you so much for offering to help. That was sweet. I'll be ok. At least that's what I keep telling myself. As you already know, this is the hardest thing I've ever had to face.
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