M
Reaction score
0

Profile posts Latest activity Postings About

  • It was my choice so I shouldn't depend on others. My daughter went shopping with her dad yesterday and today I am going to take her out to dinner later. I was able to go to church this morning. .. did u remember to change the time one hour back.
    Thank u so much for ur understanding... what is long term care insurance I never heard of that... my family is from the dominican Republic and they travel there throughout the year I dont understand how they could go away as if nothing is going on. My aunt leaves for 6 months at a time and my sister she is already planning to go there for one month in the summer. Sometimes I get angry but other times I think it was my choice to care for my mom
    Family- we all have issues. No wonder you are angry. Your sister doesn't have to deal with this on a day to day basis. I wish I could talk to her. Your life is just as important as hers. Don't let my Mama claws come out. You could be my daughter. You know I have learned so much on this journey. After reading stories of the young CALS, I am going to check into long term care insurance. I don't want my boys to have to go through what you are going through. Your mother raised a wonderful daughter and if she could speak I'm sure she would tell you that so I will for her...........
    Yeah my family has no consideration my sister's life is all about her husband and kids. I get angry at times when I think about it but in the end I think my family will have alot of regret. If my mom has alot of mucus then I sleep on the sofa but if she doesn't and I see she falls asleep I sleep in my bed and get up every few hours to check on her.
    No I haven't seen the bubbling in his mouth but I do here it around his trach. I hope you are able to enjoy your daughters B-day tomorrow. You have given so much of yourself. Has your sister ever thought about what you have to deal with everyday (sorry just had to say it). I would hope she would give you a weekend away for all of it. I'm in the same boat. I've slept on the sofa for the last 3 months and it would be nice to sleep in my bed. But knowing me I wouldn't be able to sleep if anyone came over - waiting for the alarm to go off. My husbands favorite saying "It is what it is". Glad the Percocet is working for your mom. I did get to sleep all night last night did u? Just remember You are an amazing woman for taking care of your mom. When we loose someone we love we are full of regrets. Could we have done more? I hope yours will be few.
    But never to bath her and then in the weekend they have dinner parties. My sister doesnt work but says she cant take seeing my mom like this. Tomorrow is my daughter's 13 bday im gonna try to take her out but if my mom is t having a good day I will have her dad take her out he lives in another city but not to far. Did u get any sleep last night
    Well my mom seems to be calmer with the percocet now its working better... I know what u mean when I take my mom for trach change it takes all day and it takes a toll on her all that movement from beds and ambulance and step is alot for her body. My mom has a lot of mucus since last week its leaking all arou d her trach and even comes out of her mouth like bubbles have u seen that before....my family comes to visit
    It's hard to think about 2014 when ur just trying to get thru the day. I know how important becoming a nurse is and I want you to follow your dreams if at all possible. But I know where you are coming from. It's hard to plan anything in the position we are in. How is your mom? Is she still in pain? I hate that part. No I hate everything associated with this disease..........
    The only thing that hospice did was send a CNA over 3 times a week to bath him and a nurse came once a week for his vitals. When you are on a vent everything changes. I thought someone would come over to give me a break - didn't happen. No one wants the responsibly and liability of a vented pt. So here we are in never land . Didn't go out today. Joe was not feeling great. That trip to the hsp and trach change takes its toll on him. Lots of secretions and was up a a lot. It will take him 3-4 days to get over it. Can't get anyone to come to the house to change it out. Why not!!!!!! It's a shame we have to go through this ordeal.
    Thanks for the vote of confidence. You know you have to use your own judgement with the meds sometimes. That's what I do. It's like when your children were babies -go with your gut feeling. Of course we don't want to over medicate but you have to do what you have to do.
    I believe u can change the trach I did it once because it came out so I had to put it once in. I think u can do it. We shouldnt have to take our love ones to a hospital trach change ahould be done at home.... well the percocet alone not working but I noticed if I give her one percocet and one lorazepam then she seems comfortable for 4 to 5 hours..
    started crying this morning because I couldn't understand what he was trying to say. So sad my heart breaks for him. Days like that I just wish it was all over- it's just going to get worse.......
    Would you believe I ended up putting the trach in. This dr thinks I can do this on my own. He's nuts....dr came over and bumped up his Lortab and fentanyl patch. Changed from Zoloft to cynbalta which also helps with pain. How is you moms pain level?
    Hi. U have been caring for your mom for such a long time. My mom was diagnosed in dec 2012 with bulbar onset. She is 86. Thanx for checking in with me
    Take care, trina
  • Loading…
  • Loading…
  • Loading…
Back
Top