Recent content by Molly90

Thank you all so much for your replies. I don't feel so alone now and Hospice will be involved tomorrow also will take a water sample to be tested. Many thanks x

Hi thank you for your reply,not sure I was expecting that reply, which is my silly fault. You see I just don't know where we are here with this. My hubby has Mnd/FTD. He can still walk, talk, swallow. He has muscle waste in top half of his body, and his breathing is very shallow. He spent a few...

Hi, For the last 3 days my husband has slept, occasionally waking for 10 minutes or so, when he does wake he is extremely muddled. He is groaning and rambling in his sleep. He doesn't want to eat. He has refused a Bipap machine and his breathing is becoming worse not quite sure what to do, as...

Hi Grandboys, I empathise with you and if it helps understand totally how hurt, annoyed, upset and all those other emotions you feel, when our husbands have no feelings towards our plight. I was told on Friday I am borderline diabetic, no big deal but when I told my husband he just said Oh. The...

Hi Again to you all, I haven't been on here for a while. I have been asking many questions and reading up on FTD and MND. I am slowly coming to terms with hubbys diagnosis. One of the most challenging things I am finding to deal with is my husband easy going is not in the least interested in...

Oh my Gosh Tilly, words fail me. :cry: What a wonderful, open and honest tribute to your husband. Time is so very precious. Hugs Molly xx

Hi, I am so sorry that you are having to go through this journey as well. Tillie, has been all the way through the journey so is a brilliant Lady to give advise. As for me, sometimes I'm a blubbering wreck, other times I am strong and can handle whatever is thrown at me. I worry about so many...

Thank you all for replies. No he is not using bipap, we went to see the Neurologist yesterday and she didn't seem to want to encourage non invasive breathing assistance. But that may have been because she doesn't think he is need of it just yet. Shd did comment to us that he may not get along...

Thank you Dalvin, Can you make any further comment on the breathind aspect and that he is using his shoulders to breathe. He takes about 3 breaths to my 1. Molly

Hi Graybeard, Thank you for taking the time to reply. Yes like you he has lost his appetite, I am constantly giving him food, little and often and what ever he wants (he loves Chocolate) but I would say he is probably only getting 1000 cals a day. I am waiting for the nutritionist to ring us...

Hi, My husband has FTD with ALS he is 75 yrs of age and has shown ALS sighns for about 18 months with muscle waste and a lot of weight loss. At the time we thought it was part of FTD. It was in July 2014 that alarm bells were ringing and he was diagnosed in September. He is able to walk, talk...

Thank you vey much Tillie. I wil email you when I hear from the Moderators. Molly x

HI Tillie, If is would be Ok with you can I message you, not sure ? if you can message on this forum. The reason I ask if I can is because I don't want to annoy anyone that has ALS thinking that I am taking over their forum with chats about FTD. It seems to me that their are not many people on...

Hi Tillie, Thank you for taking the time again to reply to my post. This FTD can be very hard to understand so thank you. Fortunately we are seeing the ALS Specialist on Thursday and as she also specialises in Dementia I think she will also be able to answer the thousand and one lol questions I...

Hello to you all, I have been reading the many posts of here for ALS/FTD and it seems that in a lot of cases the FTD follows the ALS and also a lot of people with this ALS/FTD seem to get quite bad tempered. With my husband it is completely the other way round. I first saw signs of character...