Recent content by Molly1940

Thank you Acronyc for offering some specific and helpful information. I will check out those forums.

Cramp Fasciculation Syndrome- Anyone had it for an extended period of time? Hi everyone. I've recently been diagnosed by a Hopkins ALS specialist with Cramp Fasciculation Syndrome. I've read that in a couple of instances CFS has developed into ALS although the doctor said it is not a...

Have you been tested for lyme?

I am so sorry to hear about your cancer. Are you still in remission? Did you ask if possibly the chemo could have done any sort of damage that would cause these symptoms? This has caused a lot of problems for my family and although they are very supportive they don't know what else to say or...

Hi jram, Thanks for the message. I'mm sorry to hear you are going through these scary symptoms as well. From what I understand 4 years into cramping you should really feel reassured that this is a benign condition. We always have to remember that neuros have to say ominous statements to...

Hi dbcitizen, I have a similar story to yours- I left my job as well and have had a lot of trouble coping with fears of ALS as I have on-going twitching and cramps. I am a 31 year old female. I will check our your site..thanks so much for taking the time to set this up.

Acronyc- Thanks so much for taking the time to reply to my post. It's a difficult space to be in when these scary symptoms occur and doctors just kinda of shrug their shoulders. The doctor I saw at Hopkins is regarded as one of the best but he didn't really explain anything to me in depth..and...

Did you question that further? I should have asked him what he meant by that...

Thank you so much for the feedback. I am just trying to make sure I am an advocate for myself when I need to be and it appears it's time just to live with this and move on. Thanks for your kind words

Hello everyone. I should start off by saying what a wonderful support group this seems like. It is truly great to see people from around the world supporting one another in the fight against this terrible disease. I am a 31 year old female with widespread fassiculations that began in November...