Recent content by MLRMLR

  1. M

    Looking to hear your perspective, fatigue->bad swallowing->imperfect emg->twitching

    Re: Looking to hear your perspective, fatigue->bad swallowing->imperfect emg->twitchi My Husband had/has same symptoms and was tested positive for Lyme's disease. Als is not ruled out, but we are treating the Lyme portion. So far no improvement, it has been since mid May for treatment for lyme...
  2. M

    Ok Here goes, we decided to see a Lymes specialist to see if maybe Jim has Lymes instead of ALS...

    Ok Here goes, we decided to see a Lymes specialist to see if maybe Jim has Lymes instead of ALS. He has lymes. The Doctor can not tell me if he has ALS or not but he does have lymes. So from here we are going forth with trying to treat the lymes in hopes the progress of ALS stops because this...
  3. M

    Thank you for your compassion. I am feeling like there are way too many un compassinate people...

    Thank you for your compassion. I am feeling like there are way too many un compassinate people in the word when it comes to such a dianosis. My employer for 15 years seems un touched when/ if the time comes I need to stay home and care for my Husband. I may Not have a job to come back to. WOW...
  4. M

    Mexiletine vs CK-2017357

    I'm Sorry I do not know what ck is supposed to do? Can anyone please let me know? My husband has been diagnosed and we are going to Mayo for second opinon next week. I would like to know as much as possible to talk with them. Thanks , Vicki
  5. M

    This is simply exhausting.....

    Hi Ruth, My husband also has been recently diagnosed and I'm already missing things. I do feel all alone and I'm scared too. My Husband put in for early retirerment and we will find out tomorrow. He started having symptoms October of last lear. Drop foot on left leg, weakness in his left arm...
  6. M

    Hi, Thanks for talking with me. We are going next week. They told us 5 to 7 days? I guess we...

    Hi, Thanks for talking with me. We are going next week. They told us 5 to 7 days? I guess we will see. My husband found a specialist in Fond du lac that deals with Lymes disease and we have an appointment there on April 12th. We remain hopeful. My Husband just told his friends this weekend. That...
  7. M

    Hi, I'm new here. My Husband has been diagnosed with ALS on Feb 21st 2013. This still seems...

    Hi, I'm new here. My Husband has been diagnosed with ALS on Feb 21st 2013. This still seems surreal to me and my Husband. I'm so messed up from this diagnosis I can not think straight. I'm a total mess. I know I need to be strong for my Husband but I need comeone to help me through this as well...
  8. M

    Just got the word from my neurologist

    HI JELLIS, My name is Vicki. My husband has been diagnosed in February we are also going to Mayo in Rochester over Spring Break. I'm sorry for your diagnosis as well. This has been very surreal to us as well.I know he is terrified and I wish I knew what I can do to help him through this. I am a...
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