Hi, I think this is the thread you were looking for concerning what the end can be like.
http://www.alsforums.com/forum/general-discussion-about-als-mnd/17762-my-young-spouse-has-als-whats-next.html
http://www.alsforums.com/forum/general-discussion-about-als-mnd/17762-my-young-spouse-has-als-whats-next.html