Recent content by MISTRO

  1. M

    Als - pls - hsp

    Hi all, Back with a shoulder report. A bit late because I have been out celebrating the good things in life while I can stagger around. Ultrasound showed fluid on biceps tendon but not severe enough to warrant steroid injection. X-ray normal. My veterinary diagnosis is "mild" biceps...
  2. M

    Als - pls - hsp

    Hi all, Been busy at work for a few days so have only just seen your messages. I am booked in for X-ray and ultrasound of shoulder on Thursday. My GP thinks I may have traumatised my shoulder. I can think of two falls when I strained it. It occasionally seems to click and catch when I lift arm...
  3. M

    Hi Notme, Thanks for you responses to my first posts. I have now read several of your threads...

    Hi Notme, Thanks for you responses to my first posts. I have now read several of your threads which are very valuable. I came to the forum looking for people who have travelled a path similar to the one I have started on. It seems you are one of those. Have you documented anywhere a description...
  4. M

    Als - pls - hsp

    Thanks Notme, Sage advice on avoiding falls when I went a over t on to concrete this morning. I can laugh now as i got up without serious injury except to pride. My GP gave me a referral to a falls man yesterday. Didn't know falls doctors existed! Sounds like we are twins with my left shoulder...
  5. M

    Symptoms/EMG Testing/Diagnosis

    ALS is largely a clinical diagnosis of upper motor neurone failure and lower motor neurone failure when all other things (like compressed spinal cord or MS) have been eliminated by clear MRI etc. At least that's my understanding. If you don't have hyper-reflexes somewhere (UMN) or weakness and...
  6. M

    Als - pls - hsp

    Sorry Olly. I associated Olly with Laurel and Hardy! You can call me Stan. Look forward to learning from you as I tackle the challenges ahead. Mike
  7. M

    Symptoms/EMG Testing/Diagnosis

    I have just started the neurological journey too. I have upper motor signs. PLS? It is very easy to get paranoid about every tingle or change in feeling or function. You keep wondering if something else is about to happen. Especially when you are twitching all over. Remember that anxiety can...
  8. M

    Hello! 33 and neurologist thinks have PLS

    Have you read or asked about HSP. Hereditary spastic Paraparesis. Its symptoms are similar to Pls but affects longest nerves. I read it tends to be younger people and can also cause sensory deficits which are not part of pls mechanism. My neuro suggested this for me but i am 52. I probably read...
  9. M

    asymmetric patellar reflexes

    Hi, I'm new here too and in the same boat with clear emg, MRI etc. I started with left leg doing strange things. Slow is the best description. Thought I had weak hamstrings from back problem but my back is fine. My knee tended to over extend when walking. i then noticed hyper reflexes in both...
  10. M

    Als - pls - hsp

    Thanks for the replies. A special thanks to Olly for his long, thoughtful, thorough and useful description of his experience. I appreciate the time and effort on my behalf. My real reason for joining the forum was to get in touch with people and learn from those who have shared a similar...
  11. M

    Als - pls - hsp

    At 52 I had some left leg stiffness in October 2012. Noticed occasional stumbles and clumsiness prior to this. Suddenly could no longer run on the tennis court in September. Noticed fasciculations and a bit of stiffness in left arm in October as well. Neurologist diagnosed possible ALS on 5th...
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