Recent content by MissyK

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I sent a message to the chief on neurology at the U of U explaining my new symptoms and told him that I had a hard time sleeping last night as my left leg ached so badly I could hardly sleep. It felt like the worst growing pains or like someone had a tourniquet wrapped around it. I also told...

Karen, I plan to rent a place in Corona Del Mar for a couple of weeks at the begining of June. We were there for a surgery I had in March. I wasn't up to sightseeing but loved what little I did see. I thought renting a home near the beach would be good for me. My hubby can't get away from...

I have atypical Glossopharyngeal Neuralgia which is tolerable presently, but gets more painful the more tired I am as well. That may be what is causing my tongue pain. Although, it should only be painful on the effected side and my entire tongue hurts. There is definitely something...

With ALS would I have achy legs? The numbness around my lips may be stress related. I woke this morning miserable... almost as sore and weak as last night :(

I saw my internist on Friday. She was very upset that an EMG has not been done thus far and ordered one. It will be done in 2 weeks. I need answers rapidly as I'm getting weaker by the day. This evening I went shopping to the mall... my legs and feet ached like I had a bad case of the flu...

She recommended the Chief of Neurology, who specializes in ALS. She felt if I went to him, I wouldn't need to go to Mayo as the U of U neuroscience center is one of the top 5 in the nation. I'm not sure if another neurologist up there will see me or not. The chief of Neurology did my...

I hate Google... I searched to see what could be making my hands and feet hurt and the 3rd thing that popped up was NMD. I swore I'd quit Googling after the ALS specialist said he didn't think that is what I'm dealing with. Now I'm worried he just blew a lot of my symptoms off because I told...

Thank you, Kim. I think counseling is a great idea. I've been sick for over 8 months now and it is really taking a toll on me and my family. With my hands and feet now being sore and slightly weak, fear is consuming me again. I wish someone would do an EMG to help set my mind at ease. I will...

Fear is creeping back in. The bottom of my left foot has been twitching non stop for a few days now, my feet and hands hurt. Fingers almost feel like they need to be popped... hard to explain. My left hand and arm are weaker than my right and simple things like trying to unroll the toilet...

Based on listening to me talk for an hour and checking me out neurologically, Dr. Bromberg does not think I'm dealing with ALS. He told me to continue with my current doctors and to go home and have a glass of wine. He had no explanation for my bulbar weakness, hoarse voice, etc but did not...

I'm a nervous wreck... I meet with the chief of Neurology tomorrow morning. I've read mixed reviews... some love him, others do not. I read tonight that I'm being seen at one of the top 5 neuromuscular clinics in the US. I pray I get answers but nothing that will take me too soon. My toddler...

The past few days the twitching in my legs and feet have been almost non stop. In addition to that my leg muscles feel super tight... like I'm nervous and can't get them to relax. I'm also having charley horses like crazy tonight. Thursday can't get here fast enough as that is when I meet...

Thank you all very much for your time and input. I absolutely love the internet because of groups such as this... it is so nice to get information, support, and comfort from complete strangers♡♡♡

I've not been given any meds to see if they help. If I understand correctly,they might help if MG but not if ALS??? My voice and tongue weakness vary depending on how tired I am. Can that happen with ALS ? Or once the voice goes hoarse, does it stay that way? And would my tongue function...