Recent content by misschrissyg

Thank you all for your helpful advice! We got our suction machine and didn't have any scares for a few days. Today we did, but things were suctioned out quickly. It was a crying day for her, we notice on these days she has a tendency to choke. Her cold is gone as of yet. We has a nasal sprayer...

Tonight we had to call 911 as my mother was having a choking spell. She wasn't eating anything, she just starting choking on her phlegm. She couldn't stop, and we couldn't help her. We kept taking it out with our fingers, making her spit, patting her back. It has happened a couple of other times...

Lily, My mom seems to have progressed quickly as well. It was a year ago that she was having difficulties with her hand. She then took a huge tumble down the stairs. She also had difficulties getting up from her seat. We had NO clue that she would be diagnosed with ALS. By September she was...

So sorry to hear. I will keep you and your family in my heart.

Thank you for sharing your experiences with us. As I am anxious and terrified for my Mother's passing in the near future, your experience has touched me in a way that has almost calmed me. I don't like seeing her going through this, but I love having her beside me and making her laugh. I am...

Sorry I have been absent for a few days! I'm really sorry that you feel that way Leann. I do hope that you can enjoy your time that you do have with your friends and family. Thank you to everyone for the advice. We had a consultation with the Doctor today regarding her feeding tube, and to see...

Thank you all. While my Step Dad was at work this morning, I had a talk with my Mom regarding the feeding tube and her wishes. She asked me who I had been talking to. It seemed to give me a bit more credibility when I told her I had been talking to others who have been diagnosed with the...

Vent away! I know how you are feeling and the frustration it can lead to. My Mother's speech is getting horrible, I just moved home from Korea to take care of my Mother. It's really upsetting that we struggle just to figure out what it is she wants. I don't get all that frustrated, but I know...

Hi there, I wrote a thread a while ago asking for advice on moving home from Korea to be with my Mother who was just recently diagnosed with ALS. I have since uprooted my life to be with her, and while it's been very difficult to adjust and be away from my significant other, I'm very happy and...

I talk to my mother everyday, and often times twice a day. Until I can be with her, I will be speaking to her via video chat as often as I can.

I am so sorry for your loss. Stay strong. I am currently watching my mother suffer from ALS and it's all happening so fast. This forum gives me a bit more strength, but I am truly dreading this day. Just know that she will always be with you, and at least now she is free of this horrible...

I have a 2 sisters and a brother. My brother is currently with his family in Germany, and I'm not sure if he's going to try to make it home. My sister lives just a city away and has a young son, but she pays visits to my mother about once a week. My oldest sister has a baby and lives in Oregon...

Personally, I think the best thing you can do is just be there. Support your friend by educating yourself. My mother has it, and the only thing I want is for my friends to educate themselves so that I can talk to them openly. Rather, I feel that I have very few people to talk to that actually...

This is great! Thank you for being so brave as to share your story. Before my mother was diagnosed, I had NO idea what ALS really was. I am now on a mission to raise awareness also. I have raised money by throwing a charity birthday bash and educating my friends about the disease. And, I am...

My Mom was just recently diagnosed. She had symptoms when I was visiting her in July of 2013. I brought her to many doctor's appointments and they have finally diagnosed her with ALS. She has no use of her arms, is completely unable to move on her own, and her voice is worsening by the day. I...